About

Support the mission of the National Marfan Foundation to save lives and improve the quality of life for individuals and families affected by Marfan syndrome and related disorders.

The National Marfan Foundation, founded in 1981, is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.

The Foundation accomplishes these goals by:

Promoting RESEARCH to improve diagnosis and treatment and to find a cure.

Providing accurate and up-to-date EDUCATION about Marfan syndrome and related disorders

Providing SUPPORT to individuals and families with Marfan syndrome and related disorders.

1. EDUCATION

2. RESEARCH

3. SUPPORT

4. ADVOCACY