The Hummingbirds' Foundation for M.E. (HFME) is a new international M.E. charity (founded by Jodi Bassett).
The HFME's mission statement:
"The HFME is dedicated to fighting for the recognition of Myalgic Encephalomyelitis based on the available scientific evidence, and for patients worldwide to be treated appropriately and accorded the same basic human rights as those with similar disabling and potentially fatal neurological diseases such as Multiple Sclerosis."
As many of you know all too well, the situation facing M.E. patients continues to worsen.
It is so rare to read information purely about M.E. any more, that doesn't mix in a large amount of 'CFS' misinformation. Flawed concepts such as 'ME/CFS' and 'subgroups of CFS or ME/CFS' are also unfortunately gaining popularity.
No matter how you look at it, it seems that it will be impossible for us to make any progress with M.E. advocacy without some more uncompromising advocacy groups.
The HFME is not only a genuine and uncompromising voice for M.E. patients but also speaks up on behalf of all those patients misdiagnosed with 'CFS' who have other diseases, and who also deserve a chance at correct diagnosis and appropriate treatment finally.
M.E. patients and patients misdiagnosed with 'CFS' who have non-M.E. diseases need to, and can, work together to achieve common goals. Fighting for the bogus disease category of 'CFS' to be abandoned benefits all patient groups.
The HFME acts in response to facts, logic and ethics. There is no other agenda than helping all the patient groups involved to finally be treated justly and in a scientific and ethical manner, and accorded the same basic human rights those with many other diseases take for granted.
I hope you will want to be a part of this new initiative. Most involved are very ill and disabled, and so we need a large amount of people to become involved and to each contribute the small amount of time and effort that they can spare, for this to work.
Even though many of us are very ill, we can move mountains if we each contribute what little we can and work together with integrity and intelligence. (Friends and family members of patients etc. are also of course welcome to participate too.)
Please email me (Jodi Bassett) for details.
Paid membership in HFME is not yet available, but will be available soon. The organisation of the foundation is still in the early stages, although the HFME website is now complete.
To view the new Hummingbirds' Foundation for M.E. website, or to learn more about the HFME, please go to: www.hfme.org
What are the aims of the HFME?
*To disseminate scientifically accurate information on Myalgic Encephalomyelitis (M.E.) to M.E. patients; to their carers, family and friends; to the medical profession and other professions which deal with M.E. patients; to policy makers; to M.E. advocates and activists and to the general public as per the paper What is Myalgic Encephalomyelitis? and as further discussed in HFME.
*To oppose false and meaningless disease categories such as 'CFS,' 'CFIDS,' 'ME/CFS,' 'CFS/ME,' 'ME-CFS' and Myalgic 'Encephalopathy' as per the papers hat is Myalgic Encephalomyelitis? and Myalgic Encephalomyelitis is not
fatigue, or 'CFS' and as further discussed in HFME.
*To defend the M.E. community (and those with non-M.E. diseases misdiagnosed with 'CFS') from counter-productive 'activism' strategies such as renaming 'CFS' with some variation of the term M.E.
*To promote appropriate research based on proper understanding of M.E., and to oppose flawed concepts such as the 'subgroups' of 'CFS' or 'ME/CFS' concept.
*To be a voice for those suffering from M.E. who are facing mistreatment and abuse due to the false notion that M.E. is the same thing as 'CFS' and is a trivial illness or a mental illness characterised by 'fatigue.'
*To be a voice for all those patients misdiagnosed with 'CFS' who do not have M.E., but other illnesses including: cancer, fibromyalgia, various post-viral fatigue syndromes, athlete's...