Watch the It's a Girl movie trailer

The "It's a Girl" campaign is all about empowering activists to help tell the world that gendercide is real, it's happening now, and there is something that all of us can do to put an end to it. Here are all the steps you can take to get involved with the…Read More

Update on the Lilly Robyn Foundation

 We are finally nearly there. Hooray. Matthew has been working hard setting up the tax deductible fund and it is almost in place. It will be administered by Bendigo Bank and all deductions will be tax deductible. All the money collected will go to research…Read More


We have not posted an announcement for some time but we are still working with our original aims in mind. The Petition is coming along nicely (but slowly) - we desperately need another 7,000 signatures so if you can think of anyone to pass on the petition to…Read More

Lilly's Gift to her Mummy & Daddy

Dear all, Matt & I are so happy to announce that we are expecting another baby daughter in December. The results are in and she is SMA free, healthy and strong. We are very happy and truely believe that this is a gift from our Lilly, one that we will…Read More

American petition has 64,698 signatures

Bill Strong and his family have an amazing 64,698 signatures for their petition to cure SMA in America. They have also raised $19,000 in a week for their drive across America to raise awareness of SMA. They are a truly amazing family commited to raising…Read More

SMA Acceleration Act

Finally in the USA. - "SMA Treatment Acceleration Act of 2009", has been introduced in the U.S. House of Representatives by Congressman Patrick Kennedy (D-RI) and Congressman Eric Cantor (R-VA) and in the U.S. Senate by Senator Debbie Stabenow (D-MI) and…Read More

Please keep reminding every one you know to go to

We had a small increase in numbers signing the petition in the last few weeks but we need to work even harder to keep the petition going. If you know anybody who has not signed please ask them to. We need to keep this online petition going to get up to the…Read More
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