Nevus Outreach is dedicated to: improving awareness and providing support for people affected by congenital pigmented nevi, and finding a cure.
My youngest daughter Natalie (now 2 years old) was born with nevi (large and small moles) on her skin. She was born with a large mole (called congenital nevi) on her head and back and many smaller satellite moles on her head, arms, belly, legs, etc.
When Natalie was born the doctors had no idea what these large (almost black) spots were on her body. It was very scary for us since they could give us no answers to what they were or how they impacted her health. She was immediately taken to intensive care. Luckily, we were eventually put in touch with the Nevus Outreach who were able to answer all our questions and concerns about Natalie's condition. Through their help we obtained information on what they were, how they impacted her health now and in the future, and also information on the latest medical procedures to treat and/or remove them. With this valuable information in hand, we decided to remove the large nevi on Natalie's back through expander surgery. In August (just prior to turning 2), Natalie had an expander bag placed above her large mole on her back to expand the normal skin above the mole to eventually remove the mole and replace it with the expanded skin. On a weekly basis, we went to Hershey Medical Center to have the expander filled with saline until it got to be the size of a small melon. This was often painful and uncomfortable for Natalie. After 3 months of expansions, she had the operations to remove the expander and the mole. She now has a scar they runs from her left side across the top her of her butt (just below the pant line). This was worth the effort because she now has a scar this will hardly ever be visible versus a large brown mole that covered part of her lower back on the left side. The support and encouragment that we received from the Nevus Outreach gave us the strength to make this difficult and emotional decision. We have decided not to do the same procedure to remove the large nevus on her head and forehead (that causes her hair to grow darker than the rest and much faster). The effort to remove that one would be much more intensive since it involves expansions on her head and face. For now, we will just field the questions from people who want to know if we color her hair in the front. These large nevi are found in every race, and strike genders equally. There is some limited research to discover what causes this condition and how it can be prevented. Money raised by the Nevus Outreach goes to funding this research as well as to research new medical procedures to remove and/or lighten the moles. Thanks in advance for your support!
1. Help to make doctors and hospitals more aware of this condition.
2. Funding goes to help discover causes and possible prevention of this condition.
3. Research funding to find new techniques and procedures for their removal and/or lightening.
4. Provide group support of people with this condition who often feel they are the only ones with these large moles.