Lisa Kahookele, an acute myelogenous leukemia (AML) survivor from Boone, IA, first became involved with LLS’s advocacy programs through our Iowa state campaign to increase awareness of the benefits and opportunities for u
Lisa Kahookele, an acute myelogenous leukemia (AML) survivor from Boone, IA, first became involved with LLS’s advocacy programs through our Iowa state campaign to increase awareness of the benefits and opportunities for umbilical cord blood donation. The issue was personal for Lisa: she received a life-saving umbilical cord blood transplant in November 2009, which has allowed her to raise her own two boys. Motivated and enthused by her state advocacy experience, Lisa is now proud to be advocating on behalf of LLS’s federal public policy agenda.
“I don’t know why I’ve been so lucky,” said Lisa, “but there is a reason and I want to pay it forward.”
Today and tomorrow, June 6-7, Lisa will join nearly 70 LLS Delegates visiting Washington, DC for LLS’s first “Delegates’ Summit.” This is an important and critical time to be visiting our nation’s capital. Congress is engaged in historic debates on federal budget issues – including the amount of funding for medical research and the continuation of the CDC’s blood cancer education program. During their two days in Washington, it will be the Delegates responsibility to promote the importance of LLS’s policy agenda directly with their elected officials.
Unfortunately, it is not possible to invite every one of LLS’s advocates to lobby the Hill directly, but blood cancer volunteers can still participate in the day from home!
There are two ways that you can still participate today:
1) Influence your elected officials by visiting LLS’s Advocacy Center (http://action.lls.org/) to send pre-drafted, editable emails urging members of Congress to support LLS’s legislative priorities.
2) You can follow along online! LLS representatives will post updates throughout the event on this Blog, the LLS Facebook Fan Pag (http://www.facebook.com/LLSforacure)e and @LLSADvocacy on Twitter through #LLSsummit; volunteers can join in on the discussion at the new LLS Advocacy Community (http://community.lls.org/community/advocacy); and advocates can “see” the event through pictures on Flickr (http://www.flickr.com/photos/47123211@N04/sets/72157626868050704/) and video posted on YouTube. (http://www.youtube.com/user/PDyerLLS)
Just because you could not make the trip to Washington, DC does not mean you cannot still participate in the days’ activities. Please check in from time-to-time and be a part of the Delegates’ Summit!