To generate funds for the charitable and scientific purpose of furthering the knowledge of the disorder known as Diamond Blackfan Anemia (DBA).
The DBAF is a 501(c)(3) not-for-profit corporation registered with the Charities Bureau of New York State Department of Law, 120 Broadway, New York, New York 10271.
The DBAF supports itself solely through donations and our families' fundraisers. The DBAF funds medical research projects which directly or indirectly benefit DBA patients and which are approved by the DBAF's medical/scientific advisory board comprised of medical doctors and scientists. The DBAF organizes meetings which bring together DBA patients, families, and world-renowned physicians. The DBAF provides informational literature to patients, DBA family members, health care professionals and other interested parties. The DBAF networks DBA families throughout the United States, Canada, and worldwide. The DBAF publishes a semi-annual newsletter containing personal DBA stories, DBA clinical trial information, current research, and DBA activities.
1. To collectively and actively generate funds
2. To share knowledge and inform others about Diamond Blackfan Anemia
3. To lend support to all those touched by Diamond Blackfan Anemia
4. To communicate and network familes and friends of Diamond Blackfan Anemia patients
DIAMOND BLACKFAN ANEMIA FOUNDATION
a 501(c)(3) nonprofit (EIN: 16-1459422)