About

The Cavan Tommy Hoey Trust (Ireland) belives we are the only Ultra Rare Disease Group in Ireland we are fighting for Children who have Ultra Rare Diseases we Also belive we are the only group in Ireland who is lobbying for support and a cure for Histiocytosis, Quick Facts, Histiocytosis is an abundance of histiocytes,a type of white blood cells that attacks healthy organs ad/or tissue Histiocytosis affects approxmately five in 1,000,000 people eace year in the United States:76%are children.Langerhans cell Histiocytosis has also been known as Histiocytosis X,Eosinophillic Granuloma, Letter-Siwe Disease,and Hand-Schuller-Christian Syndrome.Chemotherapy and radiation are two primary methods of treatment for Histiocytosis.Histiocytosis is not contagious ,nothereditary and paitents cannot infect anyone else with the disease.Histiocytosis is considered an orphan disease affecting so few people it warrants little to no fedral government funding (sourced from Histio) We also support Research and funding into X-Linked Lymphoproliferative Syndrome (XLP) Epstein-Barr Virus (EBV)

Donations Go To

Starlight Children's Foundation MidAtlantic
a 501(c)(3) nonprofit (EIN: 52-2198735)