Stimulate & support advanced clinical and laboratory research and clinical care initiatives in DBA, while increasing DBA awareness among the scientific, medical, and government communities.
DBA is a severely rare blood disorder that is usually diagnozed during the first year of life. As a rare disorder, the quality of information is scarce and it is much more challenging for families to stay current on important information throughout the year on a wide range of important issues including the state of the science, the status of treatment options, advocacy initiatives, patient and family support groups, events, conferences occurring, and more. With increased public awareness of DBA, there has been a dramatic increase in DBA research initiatives, which has resulted in significant scientific advancements including gene discovery and potential new treatment options. The DMA4DBA support DBA, raise awareness "cause" on Facebook's Global geography will help provide updates on federal support being provided through the National Institutes of Health and the Centers for Disease and the Administration, as well as patient support information regarding notice and reports on DBA specific special events, camps, fundraising notices, and guides to help families coping with DBA. www.diamondblackfananemia.org