Amy Mullen was born on January 6, 1976 with Cornelia de Lange Syndrome. Due to the syndrome, Amy hear was very weak and after her two month fight, Amy passed away without ever leaving CHOP.
This cause was started by Kirsten Mullen in memory of her sister Amy Michelle Mullen who was born on January 6, 1976 with Cornelia de Lange Syndrome. Amy never left Children's Hospital of Philadelphia and passed away March 4, 1976. Please help to find a cure for this disease. A lot of progress has been made and many children go on to live full lives.
1. All monetary donations will go into Amy's Memorial Fund to benefit children with numerous diseases in our area.
2. Our main goal is to find a full cure for Cornelia de Lange Syndrome through donations to Children's Hospital so no other families have to sufffer
3. Our other goal is to provide whatever we can for different charities and children's hospitals through donations, monetary and otherwise;
4. Checks can be made out to "Amy's Fund" and mailed to : Amy's Fund - P.O. Box 83, Newtown, PA 18940