About

Come join us on Saturday May 29th to help fight this disease and find a cure !

Rett Syndrome is a devastating neurological disorder seen almost exclusively in females. It is the leading genetic cause of severe impairments in girls. Little girls with the disorder are born without any signs of the syndrome. By the age of 2 years, loss of language and motor skills are prominent. Breathing, digestion, heart rate and sleep patterns are dysfunctional. Scoliosis begins. Teeth grinding occurs. Seizures develop. Rett Syndrome leaves its victims profoundly disabled, requiring assistance with every aspect of daily living. These beautiful little girls, from the outside, look like perfect angels. However, Rett Syndrome takes over and robs them of a healthy life.

1. Grace is a beautiful girl who is affected by this awful disease. Let's fight to help her and others just like her.