To help raise awareness of and fund research for Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms.
Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin(and other organs), muscles and ligaments. The fragile organs and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue.
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1. EDS is underdiagnosed
2. EDS can be life-threatening
3. EDS treatments need improvement