Chromosome Disorder Outreach Inc. (CDO) is a non-profit organization that provides support, information, and advocacy to all those born with any rare chromosome disorder.  CDO also works to promote research and raise awareness and understanding.

CDO was founded over 22 years ago by parents of children diagnosed with rare chromosome disorders. CDO relies solely on contributions and we do not receive government funding or grants.

CDO is a member of the National Organization of Rare Disorders and the Genetic Alliance.  

Over the years, CDO has helped thousands of individuals and families find information on the rarest of chromosome disorders, connected them with others who share their concerns and above all else, let them know they are not alone.  Learn more by visiting www.chromodisorder.org

Now you can help too!

Distribute Brochures

Help us raise awareness of these very rare disorders by printing brochures from our website and distributing to all who would benefit from knowing more about CDO.  


Your support is crucial to our continued efforts on behalf of all those diagnosed with any rare chromosome disorder. CDO provides support and information in the form of the latest in journal articles, personalized networking programs, technical genetic consultation services, connections to researchers, social media applications and much more. CDO’s ongoing mission is to raise awareness and further education to help improve the lives of children and adults dealing with these rare disorders. Donations are also gratefully accepted in honor or memory of loved ones.

Take Action

Rare Chromosome Disorder Awareness Week: June 2-8, 2014 is coming soon. Learn more about how you can raise awareness during this week or anytime. E-mail us for more information.   

Stay Informed

Follow CDO on Twitter, YouTube and Pinterest. Join our Facebook group and icontact.com mailing service to receive the latest research updates.  

Register with CDO

If you or a family member has been diagnosed with a rare chromosome disorder, please consider joining CDO. Each new registration application helps us learn more. Using a newly introduced web application CDO has the capability to specifically categorize chromosomal karyotypes and finally begin to understand more about the genes involved in each rare chromosome rearrangement. We hope to eventually improve specifically tailored treatments to help affected individuals. Join CDO by visiting www.chromodisorder.org

Beautiful Awareness Bracelets

CDO too offers beautiful awareness bracelets through Hearts Creations on Etsy.com customized with the chromosome number of your choice. Each purchase you make from any of the above programs returns a small donation to CDO.

Support Our Online Store

Please support CDO by purchasing any of the several products available from Zazzle.com/cdo_inc - from t-shirts to key rings to mugs and mouse pads. We receive a portion of the proceeds of all sales. Your purchase helps CDO and increases awareness of rare chromosome disorders.

Shop at Amazon – visit Smile.Amazon.com and choose Chromosome Disorder Outreach.

Car Awareness Ribbon Magnets and beautiful new glossy bookmarks are also available - to order these items, or for more information, please visit our website: www.chromodisorder.org or send us an e-mail: [email protected] or call us at (561) 395-4252.


Need more information?  Please contact:

Chromosome Disorder Outreach Inc.

P.O. Box 724

Boca Raton FL  33429-0724

(561) 395-4252