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Connect, Collaborate, Communicate and Educate

Children's Rare Disease Network exists to connect the rare disease community, create greater public awareness and aid in the development of effective therapies and treatements within the children's lifetime.

Our goal is R.A.R.E. -- Rare Advocacy and Rare Education!

We want to generate 1 million supporters both within the rare disease community and those not affected, but who care!

Please join our team and cause. Visit us at The Children's Rare Disease Network Group



1. Help us build 1 Million Supporters Globally!!

2. Join Facebook Group:

3. Online:

Donations Go To

Global Genes
a 501(c)(3) nonprofit (EIN: 26-3331487)