The Lili Claire Foundation was established to enhance the lives of children living with neurogenetic conditions, while providing hope and resources for the families who love them.
The foundation continually strives to expand and provide intensive, supportive, and comprehensive services FREE OF CHARGE to meet the various complex needs of individuals with neurogenetic disorders such as Williams syndrome, down syndrome, autism, and fetal alcohol syndrome. We believe that by focusing on holistic needs, we can provide a quality of care unparalleled by the traditional health care and social service systems.
Currently we offer:
*Medical Genetics Clinics
*Social Services for the entire family
TO SUPPORT THE LILI CLAIRE FOUNDATION, please look at our group page for upcoming events and ways to get involved.
The Lili Claire Foundation was born from Keith and Leslie Litt Resnick's dream to honor the memory of their infant daughter Lili Claire, who was born on October 18, 1997. Soon after her birth, the Resnicks learned that she had a neurogenetic condition called Williams Syndrome, which would result in life-long cognitive disabilities and medical challenges. Tragically, Lili passed away when she was five-and-a-half months old, having undergone an 18-hour open-heart surgery to correct a severe heart condition common to Williams Syndrome.
Although she was only here for a short time, Lili inspired her parents to create The Lili Claire Foundation to help other children living with neurogenetic conditions. The Lili Claire Family Resource Centers at UCLA, Meharry Medical College in Nashville, Renown Medical Center in Reno, and the University of Nevada School of Medicine in Las Vegas address the special needs of these children today while providing them with hope for tomorrow. Because of the support from people like you, The Lili Claire Foundation is able to provide all of these services free of charge.
1. Everyone's a miracle.