Please donate now, you have 2 days left to make it count for 2012! All funds go directly to ALD research in Minneapolis via the Children's Cancer Research Fund! His doctor is workig to make transplant a safer, more effective option for ALD boys. Alex thanks you!!
We are fundraising for CHILDRENS CANCER RESEARCH FUND. Join us in supporting them.
Hoping you all have a safe, healthy and happy new year! Please continue to spread the word about ALD...more boys are being diagnosed, and more boys are dying, every day. We continue to hope and pray for a cure. Please continue to help Alex in his fight by spreading the word, promoting newborn…Read More
Fortunately, we had a pretty quiet summer with just one hospital stay in June, and our annual trip to Minneapolis in July! Alex will be repeating 5th grade this year at Bristow Run, which he asked for, and we were all definitely in favor of, so I know he's going to have a great…Read More
Alex has a new diagnosis, so in addition to ALD, Blindness (CVI), and Addison's Disease his physiatrist has now added Spastic Quadraplegia to his list. It's not a new change, more like an official diagnosis for his existing physical disability.
He endures so much every day...please, continue to…Read More
Just wanted to let everyone know Alex is home from the hospital now! He is the "new and improved Big Al" with his medi-port and feeding tube!!
We have a Pulse Oximeter, Oxygen Concentrator, 2 Oxygen tanks, a blood pressure monitor, Nebulizer machine and Feeding Pump on an IV pole set up in Alex's…Read More
Alex has definitely had some significant losses this year, primarily in physical abilities. It's been a hard year for him...he experienced countless fevers and nausea, he had ITP (critically low platelets), hemolytic anemia, respiratory failure, renal failure, spent a week in intensive care was…Read More