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As a rare disease, cystinosis and the needs of its community have largely been overlooked. As a person with cystinosis or parent of a child with cystinosis, you know firsthand the challenges that come with the diagnosis.
For this reason, the Cystinosis Research Network (CRN) has developed The…Read More
The 2010 CRN Spring/Summer Newsletter is now available on the website at http://www.cystinosis.org/filemanager/file/10Spring.pdf
Updates are also available regarding the Raptor clinical trial for DR cysteamine, the FDA filing of the cysteamine eye drops by Sigma Tau, and the 2011 CRN Family…Read More
The CRN Spring/Summer 2010 Newsletter is now available on our website at:
Look for more updates on the website, including information about Sigma Tau's FDA filing of the cysteamine eye drops and the announcement for the 2011 CRN Family…Read More
The Cystinosis Research Network is happy to announce that it will provide funding for three new research projects as a result of it's 2009 Call for Proposals. These studies represent an additional $250,000 in research funding, putting CRN's current research funding commitment at $1.3 million…Read More
Please check out video I"ve posted from the 2009 CRN Family Conference, held this July in Stone Mountain, Georgia.
Christy Arndt Greeley