As Mark Freifeld was writing to the Congress: One of the most difficult pieces of information to hear is that modern medicine has nothing to offer: no cure, no treatment, no hope. How could that be? MSA is a rare disease and since rare disease does not provide the profit opportunity for the pharmaceutical industry, finding a cure for MSA is dependent on research grants and private donations…
The population of the Earth is estimated to be 7.158.889.700 (as of July 26, 2013) - ((was 7.044.688.950 (as of June 1, 2012)-) This means that statistically we can estimate that worldwide 357.944* - (347.635* in 2012) people may be affected with MSA at this time. (*<5 cases per 100.000) We want to have a candle lit for everyone that may be affected with MSA and for all those loved ones…
Worldwide action to be held on the 3rd of October (World MSA Day).
Miles, all day long
Light a candle at 20:00 hrs / 8:00 p.m. for one hour local time
The population of the Earth is estimated to be 6.952.785.870 (as of August 1, 2011). This means that statistically we can estimate that worldwide…Read More
light a candle for all msa patients from the World and do this all the month of March, as it is Awareness Month for MSA.