Jaxon's Parent's have been in Atlanta at the Childrens Hospital for 4 weeks and they are not even on the heart transplant list yet! Due to his 2 previous open heart surgeries, Jaxon's anti-bodies are too high at the moment and his body would instantly reject a new heart. He has been going through chemotherapy for 2 weeks to hopefuly lower the count.
This is Jaxon , he is 21 months old and diagnosed with HLHS ( Hypoplastic left heart syndrome) which is a condition where when your born the left ventricle of your heart is severely under developed. Already this brave little boy has had to endure 2 open heart surgeries , the first at 6 days old ,…Read More
Jaxon has been weaned from the Milrinone and has had the central line remove as well. He seems to be doing ok without the med so far. We will be coming home tomorrow on oxygen and an NG tube. I handled an NG tube for 11 months so thats nothing new, weve never been home on oxygen. Jax will be on…Read More
A few photo's of jaxon