On April 19, 2011 the very first CDH parade ever was held in the U.S.. By April 19, 2012 the day grew to be celebrated around
the world and 17 governors issued proclamations for CDH Awareness.
In 2013, the U.S. Senate and the U.S. House of Representatives both
introduced Resolutions to make April Congenital Diaphragmatic Hernia
Awareness Month. On
April 19th, 2013 parades were held around the country, over $30,000 was
raised for CDH Research, buildings were lit in several cities and over
10,000 people raised Congenital Diaphragmatic Hernia Awareness around
100% of money raised for April 19th in the United Kingdom will go to CDH Research Centres in the UK.
Congenital Diaphragmatic Hernia
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000.
Our goals for 2014 are: