On April 19, 2011 the very first CDH parade ever was held in the U.S..  By April 19, 2012 the day grew to be celebrated around the world and 17 governors issued proclamations for CDH Awareness. 

In 2013, the U.S. Senate and the U.S. House of Representatives both introduced Resolutions to make April Congenital Diaphragmatic Hernia Awareness Month.  On April 19th, 2013 parades were held around the country, over $30,000 was raised for CDH Research, buildings were lit in several cities and over 10,000 people raised Congenital Diaphragmatic Hernia Awareness around the world.

100% of money raised for April 19th in the United Kingdom will go to CDH Research Centres in the UK.

Congenital Diaphragmatic Hernia

CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.  CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive.  The cause is not known.  Over a half million babies have been born with CDH since 2000.  

Our goals for 2014 are:

  • US Congress to proclaim April 19th the International Day of CDH Awareness
  • 40 US States to proclaim April 19th the International Day of CDH Awareness. Click here for a sample letter to send your Governor and Mayor
  • 75 Cities worldwide to proclaim April 19th the International Day of CDH Awareness 
  • Parades of Cherubs in 25 cities on April 19th
  • Involve 10 hospitals in the Parade of Cherubs
  • Light Up The Night or other event in 10 countries on April 19th
  • Virtual Parade of Cherubs 
  • Light up 3 more national monuments on April 19th
  • Have at least 50 CDH families hold events or fundraisers on April 19th
  • Raise $50,000 for CDH Research
Would you like to participate and help plan a Parade of Cherubs or other event on April 19th in the UK?  Please e-mail us at uk@cherubs-cdh.org Learn more at http://www.cdhawarenessday.org

Keep up with UK CDH events via our Facebook page at https://www.facebook.com/cherubsuk including the 2014 CDH Conference in Dublin
to comment