Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis Syndrome (PFAPA) My daughter has this and before we found out she had it I had never heard of it... Many children and adults go undiagnosed because there are even some doctors that have never heard of this.. Jessalyn's doctor and I are learning about it together and I would love to help get the word out for this.
PFAPA is a syndrome that consists of recurrent episodes of fever, sore throat, mouth sores and swelling of the glands in the neck.
Use of steroids at the start of an episode can stop it, but also may shorten the time to the next episode.
PFAPA usually resolves…Read More
We are almost 5 years into this disorder. My son would have 104-105 fevers unresponsive to fever reducers, every 21 days. The fevers lasted 3 days. On top of the fevers, he suffered with horrible headaches, stomach pain, joint pain throughout his body, including knee pain where he was unable to…Read More
My daughter has been fighting this every 6 weeks for 3 years. We just got diagnosed in Feb. of this year. We treated her with steroids as prescribed for about 6 months and found our episodes to grow closer together and hated the side effects of the medication. We opted for a Tonsillectomy and…Read More
My daughter had recurrent fevers since she was 3 yo. Her fever cycle is every 21 days. Everytime we see a doctor the diagnosis is usually viral infection and whenever I asked about PFAPA it seems theyve never heard of it. One doctor suggested tonsillectomy. But Im not sure about this option.
POINTS TO REMEMBER
PFAPA is a periodic fever syndrome that includes symptoms of pharyngitis, mouth sores and swelling of the neck glands.
Episodes usually end during the second decade of life.
Steroids given at the start of an episode usually end it, but the result may be more…Read More