By liking our page, the IWSA can become more visible, thereby creating more opportunities for families around the world with WAGR/11p Deletion to find the support they need from other families who have "been there".
We are fundraising for International Wagr Syndrome Association. Join us in supporting them.
Thirteen years ago, Braxton was diagnosed with this rare genetic disorder. We did not know what the future would hold, but the IWSA put us…Read More
We have recently welcomed several new families to the International WAGR Syndrome Association. The response from our current families to the new families, and vice versa is always amazing and inspirational. To go from the feeling of fear and confusion of receiving the WAGR diagnosis, to being…Read More
WAGR Weekend is one of my favorite times of year...it costs about $5,000-$8,000 a year for the IWSA to keep costs low to the families to…Read More
I love to see the number of new people to our cause. Thanks to all who have joined and continue to spread the word. I was just talking to a pharmacist today about WAGR/11p Deletion Syndrome. He (being the Sunday morning pharmacist) was baffled that I was picking up high blood pressure meds for my 8…Read More
I haven't been on this page in a long time since we started the non-profit profile page for the IWSA; but, let's get some activity on here again. Have you invited any of your newer FB friends to help you create awareness of WAGR/11p Deletion Syndrome? Go ahead and do that! People should…Read More