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house Bill H.R. 4764

Should Federal Funding for the National Bone Marrow and Cord Blood Registry & Coordinating Centers be Reauthorized?

Argument in favor

This bill would reauthorize important bone marrow and cord blood donor matching programs that are essential to saving the lives of people with blood cancer, sickle cell anemia, and inherited metabolic or immune system disorders. Congress must reauthorize this funding to ensure that patients remain able to access lifesaving transplants.

jimK's Opinion
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09/29/2020
There is no good reason not to keep this activity funded. It has and will continue to save lives and the costs are so little compared to the benefits. Yet another argument for nationalized healthcare. These activities should be part of a national health care plan with a strategy and long term focus. the coordination of this and similar activates could cost effectively be managed with central database. The pandemic and the fact that the legislature has to deal with items such as this on an ad hoc basis shows just how imperative a long term universal healthcare has become. Many of the pandemic medical issues and tragic personal costs would be eliminated, purchasing would become cost effective when done in great scale as would negotiated prices for pharmaceuticals and medical equipment.
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Brian's Opinion
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09/29/2020
Absolutely. This is necessary for those who need these transplants, and we should do everything we can to support healthcare for all. Privatizing healthcare doesn't work, and it's time to stop acting like it does. The rich can do whatever they want, but all Americans deserve affordable healthcare.
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Kodiwodi's Opinion
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09/29/2020
Though remarried, I am the widow of someone who would have died from aplastic anemia had he not had a bone marrow transplant. He was in the Air Force at the time so the military was able to find and fly a match to him. Most people do not have this advantage yet require these services desperately. Bone marrow and cord blood are really a matter of life and death. Anything that can be done to re-authorize the Centers should be done. @Jason a private corporation would be considered to be selling organs which I believe is still illegal in this country.
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Argument opposed

The federal government shouldn’t be in the business of funding transplant registries if a private-sector solution that doesn’t rely on taxpayer funding can be implemented instead. In an era of ballooning federal debt and growing bureaucracy, it would be best to either privatize the programs this bill would fund or establish them as charities run on public donations rather than taxpayer funds.

Just.Dave's Opinion
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09/30/2020
Its a house bill. I dont care what it says. No.
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Caren's Opinion
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10/01/2020
The federal government has its hands full and we, the taxpayers are not going to need our taxes going up especially with everything that has occurred with this plandemic. Again, after our personal experience with Covid, not given anything aside from taking over the counter meds, and not given the right to try anything to combat it left me suspect. A bout of bronchitis last year was worse. No, we have our hands full, government has it’s hands full and we can’t afford more expenditures. Businesses and the private sector should contribute more and the medical community should field donations for this program.
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Gregg 's Opinion
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10/01/2020
Let Doctors be doctors and stop having government influence! The Government involvement with health care is not good.
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What is House Bill H.R. 4764?

This bill, known as the TRANSPLANT Act of 2019, would reauthorize the C.W. Bill Young Cell Transplantation Program, the “Be The Match” National Registry, and the National Cord Blood Inventory (NCBI). This renewed federal funding for the national bone marrow and cord blood registry and coordinating centers would ensure the continued provision of lifesaving transplants to treat diseases such as blood cancer, sickle cell anemia, and inherited metabolic or immune system disorders.

To advance science relevant to transplants, this bill would also:

  • Seek to reinvigorate the federal Advisory Council on Blood Stem Cell Transplantation, which provides expert recommendations on issues impacting the timely delivery of bone marrow, cord blood, and peripheral blood stem cells to patients in need of transplants; and
  • Require the Dept. of Health and Human Services (HHS) to review the state of the science related to regenerative medicine for the purpose of potentially including these innovative therapies in the outcomes database for the C.W. Bill Young Cell Transplantation Program.

The HHS review, which would occur at least once every two years, would also include investigating the use of adult stem cells and birthing tissue for research and development of new therapies.

This bill’s full title is the Timely ReAuthorization of Necessary Stem-cell Programs Lends Access to Needed Therapies Act of 2019.

Impact

Patients with blood cancer, sickle cell anemia and inherited metabolic or immune system disorders; national bone marrow and cord blood registry; C.W. Bill Young Cell Transplantation Program; National Cord Blood Inventory; and federal funding for the C.W. Bill Young Cell Transplantation Program and National Cord Blood Inventory.

Cost of House Bill H.R. 4764

A CBO cost estimate is unavailable.

More Information

In-DepthSponsoring Rep. Doris Matsui (D-CA) introduced this bill to ensure the continued availability of lifesaving transplants for blood cancer, sickle cell anemia and inherited metabolic or immune system disorders:

“For the 1.3 million Americans fighting painful and potentially life-threatening blood cancer or bone marrow disorders, a successful transplant brings hope and a second chance at life. Reauthorizing the C.W. Bill Young Cell Transplantation Program, the ‘Be [the] Match’ National Registry, and the National Cord Blood Inventory are critical in connecting patients with donors and funding life-saving research to eradicate these devastating diseases. I am proud to introduce the TRANSPLANT Act so we can continue to support patients in need and those willing to give the gift of life.”

Lead Republican cosponsor Rep. Gus Bilirakis (R-FL) adds:

“This bill is about providing hope to those who are struggling with life-threatening illnesses.  This federal program provides critical support in the advancement of research for better treatments and the infrastructure necessary to organize registries which help ensure transplant patients have access to life-saving procedures.  Its reauthorization is vital, and I hope our colleagues will join us in expediting passage of this important legislation.”

Original cosponsor Rep. Chellie Pingree (D-ME) observes, “Every year, more than 17,000 people are diagnosed with illnesses where bone marrow and cord blood donations can quite literally save their lives.”

The National Marrow Donor Program (NMDP), which operates the C.W. Bill Young Cell Transplantation Program, including Be The Match Registry, supports this legislation. NMDP/Be The Match Chief Policy Officer Brian Lindberg says:

“Ensuring access to cellular therapy is critical for the patients we serve. We encourage Congress to reauthorize [the C.W. Bill Young Cell Transplantation Program and National Cord Blood Inventory] to expand the number of adult volunteer donors and cord blood units on the national registry so that every American who needs a transplant can find a match…. Quick action by this Congress will protect access to life-saving bone marrow and cord blood transplants that can ultimately save lives.”

This legislation passed the House Committee on Energy and Commerce by voice vote with the support of 51 bipartisan House cosponsors, including 39 Democrats and 12 Republicans. 


Of NoteThe National Marrow Donor Program (NMDP), established in 1986, connects patients with their donor matches for life-saving marrow or umbilical cord blood transplants. It also works to identify and eliminate financial and other barriers faced by patients, thereby helping to ensure that all patients, regardless of financial status, are able to access life-saving treatments. Finally, the NMDP provides patients and their families with one-on-one support, education, and guidance before, during and after transplant and collects data for each transplant to help improve patient outcomes.

The NMDP’s national registry includes over 20 million potential bone marrow donors and over 254,000 units of umbilical cord blood, including more than 100,000 National Cord Blood Inventory program (NCBI) units.

Since its inception, the NMDP has enjoyed consistently strong bipartisan, bicameral support. Congress has consistently reauthorized the program every five years.


Media:

Summary by Lorelei Yang

(Photo Credit: Be The Match)

AKA

TRANSPLANT Act of 2020

Official Title

TRANSPLANT Act of 2020, as amended

bill Progress


  • Not enacted
    The President has not signed this bill
  • The senate has not voted
  • The house Passed September 30th, 2020
    Roll Call Vote 414 Yea / 0 Nay
    IntroducedOctober 18th, 2019

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    There is no good reason not to keep this activity funded. It has and will continue to save lives and the costs are so little compared to the benefits. Yet another argument for nationalized healthcare. These activities should be part of a national health care plan with a strategy and long term focus. the coordination of this and similar activates could cost effectively be managed with central database. The pandemic and the fact that the legislature has to deal with items such as this on an ad hoc basis shows just how imperative a long term universal healthcare has become. Many of the pandemic medical issues and tragic personal costs would be eliminated, purchasing would become cost effective when done in great scale as would negotiated prices for pharmaceuticals and medical equipment.
    Like (32)
    Follow
    Share
    Its a house bill. I dont care what it says. No.
    Like (5)
    Follow
    Share
    Absolutely. This is necessary for those who need these transplants, and we should do everything we can to support healthcare for all. Privatizing healthcare doesn't work, and it's time to stop acting like it does. The rich can do whatever they want, but all Americans deserve affordable healthcare.
    Like (15)
    Follow
    Share
    Though remarried, I am the widow of someone who would have died from aplastic anemia had he not had a bone marrow transplant. He was in the Air Force at the time so the military was able to find and fly a match to him. Most people do not have this advantage yet require these services desperately. Bone marrow and cord blood are really a matter of life and death. Anything that can be done to re-authorize the Centers should be done. @Jason a private corporation would be considered to be selling organs which I believe is still illegal in this country.
    Like (11)
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    Yes!
    Like (7)
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    Yep.....the authorization should never have been allowed to lapse......what tragedy could have been circumvented if it had been allowed to continue.
    Like (6)
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    Joanna, if you’re going to make a comment, however inaccurate it may be, at least answer the question or put it where it belongs.
    Like (5)
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    Yes, especially considering that it is a life saving program with notable success, unlike many other programs that continue to be funded with nothing to show for the investment. However, having said this, an effort should continue to privatize.
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    This literally saves lives and is a program I’m proud my tax dollars help find.
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    I’d say yes to this! Saving lives!
    Like (4)
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    Lord help me live from day to day In such a self forgetful way That even when I kneel to pray My prayers will be for others Help me in all the work I do To ever be sincere and true To know the things I do for you Must needs be done for others And when my work on earth is done And my new work in Heaven begun May I forget the crown I’ve won While thinking still of others by Charles D. Meigs
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    Why is this even in question. It’s a no brainer
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    This is important research and yes, despite trump’s disdain for science, scientific fact and climate change, congress must serve the people by continuing disease research funding so these horrific diseases can be eradicated!
    Like (4)
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    The federal government has its hands full and we, the taxpayers are not going to need our taxes going up especially with everything that has occurred with this plandemic. Again, after our personal experience with Covid, not given anything aside from taking over the counter meds, and not given the right to try anything to combat it left me suspect. A bout of bronchitis last year was worse. No, we have our hands full, government has it’s hands full and we can’t afford more expenditures. Businesses and the private sector should contribute more and the medical community should field donations for this program.
    Like (4)
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    This is a program that costs little 9relatively) and saves lives, instead of destroying them like our 'defense funding', so why not continue it.
    Like (3)
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    Let Doctors be doctors and stop having government influence! The Government involvement with health care is not good.
    Like (2)
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    These initiatives save lives while not expecting patients to be undervalued just because our current health insurance and pharmaceutical industries aren’t financially incentivized. Something for people who support this but still might demonize Obamacare: if you support things like this, then you actually are for things like Obamacare and Bidens’s public option. Being against this is basically saying only rich people deserve to live.
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    Yes I support the bill
    Like (1)
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    Joe Biden is a racist: whats weird is the media doesnt ask Joe hard questions like: why did you support Robert Byrd the senate democrat who was a KKK leader? Why did you support Strom Thurmond who was a segragationalist? When you said you didnt want your kids to be in a racial jungle, what did you mean exactly? Joe Biden supported NAFTA that sent millions of Jobs oversees Biden supported the crime bill then called black people “super predators” look it up, please Kamala Harris is a liar she laughed about smoking weed while she put black men in jail for .... smoking weed. President Trump by reducing taxes has created the best environment for jobs black Americans support Trump more than other gop candidates.
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    Another no brainer - do the right thing!
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