• Official Nonprofit

$5,000 GoodSearch Giveaway! Last chance!

You have a little over 12 hours left to download your GoodSearch toolbar and earn money for BDSRA! GoodSearch will donate a $1 for every toolbar that is downloaded between April 6th at 9am Eastern and April 9th at 9am Eastern up to $5,000!! Please download…Read More

$5,000 GoodSearch Giveaway - Three Days Only!

GoodSearch will donate a $1 for every toolbar that is downloaded between April 6th at 9am Eastern and April 9th at 9am Eastern up to $5,000!! Please download the toolbar right now by following this link - (see below for instructions on how to create a link to…Read More

BDSRA March News Flash

The March News Flash is now available! Please read the News Flash for the all the latest updates from BDSRA: http://p0.vresp.com/A5beNz IMPORTANT: The 2nd Annual Batten Disease Awareness is June 5 & 6. For ways that you can spread awareness or organize…Read More

Vote for Rare Diseases: Change.Org

Vote for the Top 10 Ideas for Change in America http://www.change.org/ideas/view/25_million_it_is_time_to_care_about_rare_disease Ideas for Change in America is a crowd-sourcing competition that empowers citizens to identify and build momentum around a…Read More

The Global Genes Project

World Rare Disease Day (February 28th) is a time when the community of affected children and families come together to garner support for their efforts. Please join the Global Genes Project in its support for World Rare Disease Day by wearing jeans. It's…Read More

February 2010 News Flash

Please read the February 2010 New Flash for the latest information and updates from BDSRA: http://hosted.verticalresponse.com/529003/44775cfeb5/TEST/TEST/ Please feel free to join our email list through the BDSRA website and forward the News Flash to…Read More

Four New Members Appointed to National Neurological Disorders and Stroke Advisory Council

This is a great stride for Batten Disease awareness and research. Kim Zellmer is one of the four newly appointed members and currently serves on the BDSRA Board of Directors as Vice President. Four New Members Appointed to National Neurological Disorders and…Read More
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