This pledge closed about 3 years ago
As many of you know, this foundation is near and dear to my heart, as I have been battling CRPS for nearly seven years. I'm happy to say that I've been doing great, since my last ketamine infusion in October.
Here at the foundation, we are still continuing to work on and receive input on HR 1020, which is the 2005 Pain Bill that went dormant on the House floor. In July, I began teaming with the Pain Management Nurse/Liaison at the INOVA Hospital System to teach Lunch & Learn classes to the Nursing Staff on RSD/CRPS and telling them about my journey. Also, I recently presented my treatment history to the Pain Board, to serve as an advocate, and assist other doctors and staff, who have not directly treated me, in gaining an understanding of my history with RSD/CRPS, while they're continuing to develop and implement a system-wide protocol.
My only goal, besides praying that I remain in a state of remission; is that I continue to utilize my journey and experience to inform others of this little known condition, and to help those that are also suffering. You never know what it's like until you walk in the shoes of others. With that being said, we would like to ask if you could spare one minute of your time and pledge your support to inform one person of RSD and this foundation. By doing so, you would be helping so many that are suffering, by spreading awareness of this condition. We go throughout our days, spending hours online, but taking one minute to do this, could make a difference in the lives of so many people.
Thank you so much!