Pledge to Make More People Aware Of Williams Syndrome This May 2013

Progress

188 pledged
+88 over goal

This pledge closed 2 months ago

This is My cousin Jazmynn she has Williams syndrome And She changed my life and i fell in love the first time i looked at her gorgeous face, I would do anything and everything for her, I love her to death and Williams syndrome has done nothing but made me appreciate my life more, Knowing she has Cardiovascular problems is very terrifying and a lot of people dont know about Williams syndrome. MAY IS WILLIAMS SYNDROME AWARENESS MONTH PLEASE SHARE! PEOPLE NEED TO BE EDUCATED : Williams syndrome is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These occur side by side with striking verbal abilities, highly social personalities and an affinity for music.WS affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States. It is known to occur equally in both males and females and in every culture.Unlike disorders that can make connecting with your child difficult, children with WS tend to be social, friendly and endearing. Parents often say the joy and perspective a child with WS brings into their lives had been unimaginable.But there are major struggles as well. Many babies have life-threatening cardiovascular problems. Children with WS need costly and ongoing medical care, and early interventions (such as speech or occupational therapy) that may not be covered by insurance or state funding. As they grow, they struggle with things like spatial relations, numbers and abstract reasoning, which can make daily tasks a challenge. And as adults, most people with WS need supportive housing to live to their fullest potential. Many adults with WS contribute to their communities as volunteers or paid employees, for example working at senior homes and libraries or as store greeters or veterinary aides. http://www.williams-syndrome.org/what-is-williams-syndrome


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