The current position of the Australian Health Department is that Lyme disease is not in Australia. This position relies on the results of one outdated research study, and ignores numerous other research that is highly suggestive of the presence of Lyme in Australia.
We, the undersigned, believe that the government’s current response to the issue of Lyme disease is not only inadequate, but is putting lives at risk. We request that the following needs are addressed as a matter of urgency:
1. Recognition that Lyme disease/borreliosis , and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.
2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.
3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.
4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.
*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”
* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.
5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatmentmethods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)
6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit.
There have been thousands of suspected clinical cases of Lyme in Australia, and yet the government insists on relying on a study that is over 19 years old to continue with the denial that Lyme Disease is not in Australia. Lyme and other tick-borne infections can have devasting consequences on human life, and yet these diseases are not fully understood by the majority of Australian medical professionals, as the health departments issue notices that Lyme is not in Australia.
Health problems such as those seen in the stories of Sophie and Hannah should simply have the happy ending ; not the years of struggle before a diagnosis. Thousands of patients are being misdiagnosed and are being denied appropriate treatment.
Below are video's of Sophie and Hannah's Lyme stories, and a 'Compilation' video of numerous other Lyme patients in Australia.
Please take a little time to watch them - and then join us to say
Enough is enough!! It is time to recognise Lyme !!
Further research into Lyme in Australia is required - NOW