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Pledge to

Support Cures in the New Year!

This pledge closed over 1 year ago

How this will help

There are 7,000 rare diseases, 30 million Americans suffer from a rare disease and 50% of those Americans are children. Of those children only a third will live to see their 5th Birthday.

Here's how you can help us find Cures in the New Year:

-Make a donation to your disease organization of choice.
-For Sanfilippo type C you can donate at http://jonahsjustbegun.org/ or http://www.jlksanfilippofoundation.com/

-Make your FB profile picture of your loved one suffering from a rare disease.
-Tell your FB friends why you changed your profile picture.
-Don't have a picture, feel free to use our heart collage. Download from JJB's FB page. https://www.facebook.com/pages/Jonahs-Just-Begun-Foundation-to-Cure-Sanfilippo-Inc/132452613432013?ref=ts&fref=ts
-Suggest where they can go to donate to your cause.

-Celebrate World Rare Disease Day with us on February 28th 2013.
-JJB will be hosting a MeetUp on January 6th in Brooklyn to discuss our World Rare Disease Day- Flash Mob.
-Host your own Rare Disease Day event. To RSVP to JJB's MeetUp or for a MeetUp in your area check out. http://globalgenes.org/world-rare-disease-day

-Help us fight for faster cures, join the Rare Disease Legislative Advocates mailing list and get ready to write your representatives. http://rareadvocates.org/
- Join JJB's mailing list to find out what we're doing to drive faster cures.
http://visitor.r20.constantcontact.com/d.jsp?llr=ptgm6agab&p=oi&m=1105984887407

Hoping for a Cure in the New Year,
JJB

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