The 11 Q Research And Resource Group Inc is a 501(c) 3 organization and your donation is tax deductible. Donations are managed by Network for Good.
Our daughter Vanessa, is one of 100,000 births that result in 11q Deletion also known as Jacobsen Syndrome. We are the only family affected in Maine and one of less than 200 cases to have been reported worldwide. 11q Deletion is a rare congential disease resulting from the deletion of the terminal region of chromosome 11, causing intellectual disabilities, behavioral issues, distinctive facial appearance, heart defects, hemophilia and a variety of other health conditions.
All proceeds of this cause will be donated to 11q Research and Resource Group, a nonprofit organization that helps families and professionals to understand and manage 11q Deletion. Your donation will also help continue ongoing research which is on the verge of collapse. We are at a time when new genetic technologies are being introduced that could potentially provide a genetic therapy..a cure!
Please help us and other 11q families by showing your support to raise awareness and support for ongoing research!
Thank you for your time and support.