Deutsch Puu, Sr. is a true American hero. He gave our nation years of military service, even when his own daughter was terminally ill. He was out on patrol defending our freedom halfway around the world when she was taken from this life. After nine deployments, including combat service in Iraq, Deutsch needs the Veterans Administration to do right by his son. Please read his story and sign the petition to push the Veterans Administration and Respiratory Home Care Specialists, Inc. of Honolulu to do the right thing. Let's show Deutsch that we are willing to fight for him as he did for us!
Deutsch Puu, Jr. (a.k.a. Deejay) is two years old and has been battling a rare disease called Spinal Muscular Atrophy Type 1, the same thing that claimed his beautiful sister, Alanis. SMA affects muscles throughout the body, causing weakness and atrophy or wasting. The brain’s cognitive functions and sensation are not affected. Sometimes feeding, swallowing, and respiratory functions (e.g., breathing, coughing, and clearing secretions) can be affected. When the muscles used for breathing and coughing are affected and weakened, this can lead to an increased risk for pneumonia and other respiratory infections, as well as breathing difficulty during sleep. Due to this, it is essential that the proper equipment be available at all times, such as respirators, suction, bi-pap, etc. While this is daunting, children with these issues are typically of above average intelligence and can lead productive lives at home with their families given the proper equipment and care.
CHAMPVA has not made payments for Deejay's respiratory equipment and there is an outstanding balance of over $14,000. Although they admit that the costs are covered by Mr. Puu's Veterans benefits, CHAMPVA claims they are "back logged" due to "understaffing" and don't know when they will get around to sending payment. Respiratory Home Care Specialists, Inc. of Honolulu has awaited payment, but as of November 1, 2012, they notified the Puu family that they will repossess their respiratory equipment in thirty days. This would force Deejay into the hospital, even though he isn't sick, just to get access to the equipment he needs. Not only is this dangerous for Deejay because of the risk of infection if he were unnecessarily hospitalized, but it creates a huge hospital bill for no reason and puts undue stress on this family who deserve the best our nation has to give.
This petition closed over 3 years ago
Please sign and pass this petition along to as many as you can so we can put pressure on CHAMPVA to do their job and to ask Respiratory Home Care Specialists, Inc. to have patience and leave...
Please sign and pass this petition along to as many as you can so we can put pressure on CHAMPVA to do their job and to ask Respiratory Home Care Specialists, Inc. to have patience and leave Deejay's equipment with him. This family has been through enough and has earned our best!