Progress

379 signed
1,999,999,621 more needed

Sign the Petition to

World Health Organization

Dear friend affected by Chiari :
We get in touch with you to make you a proposal: Many Chiari affected different countries consider it important to create an international day of our disease and related diseases to meet the following objectives:
- To show the Chiari social level through the media that would echo that day, which will help the affected us feel more understood by friends, neighbors and coworkers.
- To impart information to train the patients and their families to recognize symptoms. For example sleep apnea: many affected children may have sudden death and that the mothers of those affected would not know but receive information.
- To raise awareness among primary care physicians and pediatricians to become informed and learn how to diagnose it.
The United States welcomes the September 16 International Day of Chiari how. Propose also set national days of the disease. Each country could choose its own.
Please HELP US AND SIGN HERE http://www.change.org/es/peticiones/chiari-y-siringomielia

We also believe important to form an International Federation of Chiari in order that all countries enjoy the same information and can meet any advance or research carried on Chiari and its related pathology.
The task at hand is arduous and difficult but to get something positive is the best way to organize and provide ideas for the sole purpose of helping those who suffer, to avoid delay in diagnosis and ensure that there are centers for conducting the necessary tests such as RSM, CT, X-ray, laboratory, sleep studies and evoked potentials before deciding whether the solution is surgery.
We ask all your help and I encourage you to form part of existing partnerships or the like believe that they can join the Federation.
We thank you all and we send a message of hope and lots of encouragement to keep going.

Signed,

Grupo Chiari Grupo Chiari

This petition closed over 2 years ago

How this will help

With your signatures
People with Chiari and Syringomyelia can publicize this disease worldwide. Which is still considered rare.
If we make it known they realizarn the faster diagnoses and those...

With your signatures
People with Chiari and Syringomyelia can publicize this disease worldwide. Which is still considered rare.
If we make it known they realizarn the faster diagnoses and those affected will have less serious snitomas and improve their quality of life.

We can help to investigate more about the origin of the disease and possible less invasive surgical techniques and more effective.
Please enter this link and signing http://www.change.org/es/peticiones/chiari-y-siringomielia
Ask help for the sick by Chiari and Syringomyelia and believed the International Day of Chiari

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