This pledge closed about 1 month ago
On July 18, 2012, Senator Sessions (R-AL) who co-sponsored the Senate Resolution 204 – National Congenital Diaphragmatic Hernia Awareness Day 2010, introduced S. 3396 – Congenital Diaphragmatic Hernia Research Act of 2012 which is co-sponsored by Senator Cardin (R-MD).
This Bill is to amend the Public Health Service Act to increase public awareness of congenital diaphragmatic hernia and implore the NIH (National Institute of Health) to research the current funding levels of funds which are allocated to CDH research and also consider allocating funds and other resources for CDH Research.
Other Resources would be the NIH launching a campaign to educate the general public and those who are facing a diagnoses. It would also include the NIH encouraging Pharmaceutical and Biotechnology Companies to start studies or collaborate with already existing studies to further research into congenital diaphragmatic hernia.
Breath of Hope supports this Bill and we have standard letters here for you to write your Representatives and Senators in Congress. To find your Reps and Senators you can locate them here: http://www.house.gov/representatives/find/ from there you can locate their websites and contact them directly to support this legislation or you can download the file below to edit and send to them. As of August 3, 2012, the Bill is currently with the US Senate Committee on Health, Education, Labor & Pensions (HELP) and you can also contact those on this committee, the link to this committee and those serving is right here: http://www.help.senate.gov/
Here is the text from the letter which you can put into an email to your Congresspeople, which is the most efficient way to contact them:
Your City, ST Zip Code
The Honorable _____
Dear Senator/Representative __________,
I am writing you to ask you to support S 3396 Congenital Diaphragmatic Hernia Research Act of 2012 which encourages the NIH to enact an Awareness Campaign and allocate further funding or resources to congenital diaphragmatic hernia. I have personally been affected by congenital diaphragmatic hernia and until the day of diagnoses, had never heard of this condition.
(Insert your personal story here.)
More awareness of this birth defect is vital to educate the public, increase survival rates to inform those affect to have these children at hospitals which have higher success rates and also further treatments and interventions so lives are not only saved and their quality of life is improved.
Thank you in advance for your support.
You can also download the MS Word Template which is located on our website here:
We also have a Change.org Petition located here:
The more communication our elected officials receive on this matter, the more likely when it comes up for a vote in the House and Senate it will pass.