RSDSA Walk in NYC June 26: Still Time to Register for On-Site/Virtual Options!

Please see this link if you want to come to the RSDSA Annual Walk at Central Park in NYC on June 26, 2011 -- you CAN still come even though online registration has closed!! If you are unable to be there, you can also register as a Virtual Walker and you will…Read More

National RSD Month, RSDSA Bounty of Hope, Updates to RSDSA Causes Page!

Dear members of the RSDSA Causes page, I'd like to take a moment to thank you for your continued support of the Official RSDSA Causes Page! With your help, our page has grown to 12,875 members! I want to remind you to keep asking your friends to join this…Read More

Connecticut Pain Foundation's INvisible Project: How YOU Can Help!

Dear members, Every so often, I let you know about a great project. Well, this is another one of those super projects that I am proud to announce! RSDSA takes pride and are very selective in the organizations it chooses to endorse and support. The…Read More

Help RSDSA Win Big Bucks from Chase Giving!! 4 Days Left to Vote!!

Hi all! An update about the RSDSA walk will come very soon (I promise!). Right now, we have a time-sensitive matter on our hands and need all of your help! Chase Giving is having a contest to help eligible organizations win big money for their causes. RSDSA…Read More

Important Information for Registered Onsite Walkers regarding the June 27 Achilles Walk in Central Park

We are less than one week away from the 2010 Achilles Walk for Hope & Possibility on June 27, and Team RSDSA is at 260 onsite participants, plus more than 160 virtual walkers, our largest team to date. Please see below for important details about the day…Read More

Team RSDSA at the 2010 Achilles Walk in NYC: Instructions for Registering on Walk Day and General Information

June 27, 2010; Central Park, New York Hi all! We're days away from the walk, and everyone is very excited to get there! Read on for some basic instructions and information you may need! Unfortunately, online pre-registration is closed for Walker and Virtual…Read More

Write your U.S. Representative today asking that he/she cosponsor the Improving Access to Clinical Trials (I-ACT) Act (H.R. 2866)

From Diane Edquist Dorman, Vice President, Public Policy, National Organization for Rare Disorders (NORD) Current rules regarding eligibility for Supplemental Security Income (SSI) prevent many people with rare diseases who receive SSI from participating in…Read More
See more

8 comments

to comment