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Families of Spinal Muscular Atrophy Continuing Medical Education Conference at The 2014 Annual SMA Conference in Washington, DC.

December 2, 2013. The 3rd CME Conference for medical professionals will be on Friday, June 13th in Washington, DC at the Gaylord National Harbor Hotel. Families of SMA will hold its Continuing Medical Education (CME) Conference for medical professionals…Read More

SMA Takes Away. You Give Back Strength.

November 26, 2013. We all have moments in our lives when we realize what strength really means. And for families affected by Spinal Muscular Atrophy, it takes on new significance entirely. A few weeks ago, we asked our community to share with us what…Read More

New Edition of the Families of Spinal Muscular Atrophy Directions Newsletter.

November 25, 2013. The Fall 2013 Directions Newsletter is now available. This Family Support newsletter is one way that we try and build our community to bring us all closer together by sharing stories and experiences. Families from all over the world…Read More

Isis Pharmaceuticals to Investigate a Higher Dose of ISIS-SMNRx in Children with Spinal Muscular Atrophy.

November 22, 2013. Isis Pharmaceuticals, Inc. announced today that it plans to add a 12 mg cohort to the ongoing Phase 1b/2a study evaluating ISIS-SMNRx in children with spinal muscular atrophy (SMA). In addition, a 12 mg dose will be included in an…Read More

2nd Annual “Hope on the Hill” Congressional Dinner to Raise Funds and Awareness for Spinal Muscular Atrophy.

November 20, 2013. The 2nd Annual “Hope on the Hill” Congressional Dinner to raise over $100,000 for Families of SMA’s research initiatives. December 3, 2013 kicks off the start to several events and activities in the year ahead which will lead us into…Read More

Families of Spinal Muscular Atrophy Announces the Schedule for The 2014 Annual SMA Conference.

November 15, 2013. The schedule is announced for the 2014 Annual SMA Conference held June 12th – June 15th, 2014 in Washington, DC. Families of SMA releases the schedule for the 2014 Annual SMA Conference, which will be held at the Gaylord National Harbor,…Read More

Spinal Muscular Atrophy Researchers Participate at The 2013 Society of Neuroscience Meeting.

November 13, 2013. The Society of Neuroscience (SfN) Meeting is the premiere neurobiology meeting annually with over 30,000 scientists attending. It was held November 9 to 13 in San Diego, CA. This year multiple presentations on Spinal Muscular Atrophy…Read More
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