Families of Spinal Muscular Atrophy is Proud to be Implementing a New Support Program for Newly Diagnosed SMA Families

New Family Support Program Offered to Newly Diagnosed SMA Families. Everyone at Families of SMA is extremely proud to be implementing our latest program for newly diagnosed SMA families. We have had several conversations regarding better ways to support…Read More

Families of SMA announces Request for Proposals (RFP) for new drug programs to develop therapies for Spinal Muscular Atrophy. FSMA is aiming to fund two new preclinical drug development programs in 2011, with more to follow

Families of Spinal Muscular Atrophy Launches Next Phase of Drug Development Efforts for SMA. Families of SMA announces Request for Proposals (RFP) for new drug programs to develop therapies for Spinal Muscular Atrophy. FSMA has made significant progress in…Read More

Fundraise for a Cure for SMA

Volunteers across the country will be holding 50 fundraising events in the next two months for Families of Spinal Muscular Atrophy to raise funds for research, support and hope. Now is the time to act. These events range from the FSMA signature Walk-n-Roll,…Read More

Families of SMA 2010 Research Program Updates

Check out some of the major Spinal Muscular Atrophy research updates for 2010, including progress on the following Families of SMA funded programs: - Project Cure SMA Clinical Trials Network (http://www.fsma.org/LatestNews/index.cfm?ID=5285&TYPE=1150)-Read More

The 2010 Annual Spinal Muscular Atrophy Conference in Santa Clara, CA was a Huge Success! Workshops Now Available Online on the New SMA Community Connections Site at www.SMACommunity.org

Families of Spinal Muscular Atrophy has launched a new support program for SMA patients and families this year where many of the conference workshops are available online.  Conference presentations and videos are now available online at www.SMACommunity.orgRead More

New Edition of the Families of Spinal Muscular Atrophy Directions Newsletter Now Available Online!

New Edition of the Families of Spinal Muscular Atrophy Directions Newsletter Now Available Online! This edition includes: The 2010 SMA Annual Conference, Chapter Updates, Many Great Community Articles, Fundraising Stars, Kids Corner. Our core strength at…Read More

Support Families of SMA

We would like to apologize for those who have been looking for the Families of SMA Facebook page this past week. Unfortunately, due to Facebook’s previous privacy restrictions, our Fan page was deleted without our consent.   We know how important this page…Read More
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