syndrome
0
followers
Vanessa's Pursuit for 11q Awareness and Research
by Vanessa's Pursuit for 11q Deletion Awareness and Research
Our daughter Vanessa, is one of 100,000 births that result in 11q Deletion also known as Jacobsen Syndrome. We are the only family affected in Maine and one of less than 200 cases to have been reported worldwide. 11q Deletion is a rare congential disease resulting from the deletion of the terminal