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  • $2,624.24 Raised

Ciara's Butterfly Bash

Join us at this year's Butterfly Bash as we honor the Ion Channel Epilepsy Clinic from Miami Children’s Hospital for their dedication and commitment in caring for children with DS & related epilepsies. We will also be honoring this year's Spirit of Hope

Piper's Song, Concert for a Cure, with music by the COUNTING CROWS!

Piper’s Song, Concert For A Cure will give people the opportunity to show their support for Piper and others facing the considerable challenges of DS & related epilepsies. Monies raised will go to the Dravet Syndrome Foundation's research grant program.

Important Research Project & the DSF needs your help!

Join the DSF in raising research money for a promising new project OPKO RESEARCH PROJECT What is the purpose of this research project? More than 75% of children who have been diagnosed with Dravet syndrome have a defective SCN1A gene. As a result, the

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