Crohn's Disease & Ulcerative Colitis

Nece 5 months ago

I am 24 and found out soon after our daughter was born that i had crohns. After a trip to TX i was in Agony when they finally diagnosed me with Crohns I was on prednisone for a year blew up like a big balloon couldnt keep up with my daughter and it if i hadn't quit taking the steroids i just might have died come to find out i had a 98% blockage for most the time so when on steroids they were doing there job but they were also killing me luckily in July 08 I went to the ER and the lord sent me a Great surgeon FINALLY and he had me in surgery within the hour he took one look at my xrays and said you HAVE to have surgery I was scared it was the first major surgery ive ever had but it was worth it they put me on Remicade for about a year after wards which took some fighting with Drs to do but I've been in remission since and we now have our second baby on the way which really scares me afterwards that ill flare again

8 months ago

I just got dx with Crohn's this past Wednesday. I am 31 yrs old. I wish I knew more about this disease. Any help and knowledge is welcome. Thanks in advance.

Eddie Bling 8 months ago

im 24 and was diagnosed in may of 2008 with UC. does anyone have any tattoos relating to the disease? or know anyone who does tattoos that would resemble the disease?

Kelsey☮ツ 10 months ago

Hello. I'm 20 and was diagnosed in May of 2008. When I was diagnosed, I weighed a measly 98 lbs. I was 122 lbs before I lost all that weigh because of crohn's. I really think i've had it all my life though. I still struggle with trying to feel healthy. I have been on a diet and chicken seems to be the only meat that doesn't bother me. I don't let crohn's disease get to me, I just live my life like I would if I didn't have crohn's.

~Lori~ 12 months ago

Hi everyone! I was diagnosed with Chron's in December 2008. I have had problems for years. I was just wondering if anyone else on here was a vegetarian as well. I would like to talk to someone who has Chron's and is also a vegerarian. I need some ideas of what kind of diet I need to be on for some relief. I already know that I can't have much dairy. I get my proteins through beans and veggie "meats"

Sylvia and Justin YOU CANNOT BRING THIS about 1 year ago

Did your doctor put you on a certain diet or that?If not then I can probably give you a few pointers.Just hit me up on myspace.Take care

dan Kellems about 1 year ago

Hey I have had crohns for only one year im 25 and think its coming back again can any one help to tell me what I can do to eat and keep in remission im tired of feeling like crap.

Sylvia and Justin YOU CANNOT BRING THIS about 1 year ago

I was diagnosed with Crohn's Disease and Ulcerative Colitis at 12yrs old.I had gotten food posioning and they had thought I had started my period when I was in the hospital.I was in there for a week and they still didn't know what was wrong.My last day of 6th grade I went and seen a gastrologist who never treated children patients before.He diagnosed me and did all he could but I continued to bleed.SO I was sent the the University of Michigan Hospital.I have no relatives with the disease or even anything similiar.They said mine was environmental.I nearly lost my life twice once when I was 16 and I bleed so much after surgery my heart flat lined for a minute and the second actually right when my then finacee(now husband) was deploying to Iraq.He was not premitted to stay back as I was not his wife yet.I then had all my large intestine and rectum removed.I premenantly have an ileostomy.I was given at 16 till I was 22 years.I am now married and as healthy as can be at 24.I was in remission for the last 8 1/2 months the longest I have ever been but since my husband I have moved I have been taken out of remission.Just alot of stress with moving and meeting new people.I don't know anyone here still but I am getting better.I wouldn't however change anything that has come my way.I have a wonderful husband who juggles the ARMY and having a disabled wife the best anyone can.We plan on adopting a child from MI because I am unable to have them with 14 surgeries to my stomach and too much strain. But if you live in the Ft.Lewis area maybe you can write me.Like I said its hard for me here.Take care and prayers to all you and your families.

*Tym~2~Zoom* about 1 year ago

I am 28 years old and was diagnosed with Crohn's when I was 15. I was actually rushed into surgery with the doctors thinking it was apendicitis. I woke up in even more pain, found out that Morphine has no effect on me, and that they didn't actually fix the problem becaue it wasn't until they took out my appendix that they saw the inflamation in my intestines. I started a strict diet, strong meds, and lots of doctors apointments. My longest period of time in remission was 9 months, twice, while pregnant with my boys. I had surgery in 99 that almost killed me because post surgery one of the stitches came loose and I started to hemerage, lost a good amound of blood, passed out on the bathroom floor while still in the hospital in a pool of blood. I was then sent to ICU for a couple of weeks and went through 3 blood transfusions. I have been on prednisone for so long that my body has started to reject it. I am starting remicade treatment next week, and would be lying if I said I wasn't scared out of my mind. I have read the side effects, I have read testimonials and I am very affraid of how this is going to effect me. I am currently out on disability from work until we can figure out what can get this under control. I spent from December 29th through January 3rd in the hospital. I have an incredible family, friends and unlimited online support from total strangers who instantly become family by association of this horrible disease. All I want is to be healthy enough to be with my family and not be sick or in pain.

Leigh

*Tym~2~Zoom* about 1 year ago

I am 28 years old and was diagnosed with Crohn's when I was 15. I was actually rushed into surgery with the doctors thinking it was apendicitis. I woke up in even more pain, found out that Morphine has no effect on me, and that they didn't actually fix the problem becaue it wasn't until they took out my appendix that they saw the inflamation in my intestines. I started a strict diet, strong meds, and lots of doctors apointments. My longest period of time in remission was 9 months, twice, while pregnant with my boys. I had surgery in 99 that almost killed me because post surgery one of the stitches came loose and I started to hemerage, lost a good amound of blood, passed out on the bathroom floor while still in the hospital in a pool of blood. I was then sent to ICU for a couple of weeks and went through 3 blood transfusions. I have been on prednisone for so long that my body has started to reject it. I am starting remicade treatment next week, and would be lying if I said I wasn't scared out of my mind. I have read the side effects, I have read testimonials and I am very affraid of how this is going to effect me. I am currently out on disability from work until we can figure out what can get this under control. I spent from December 29th through January 3rd in the hospital. I have an incredible family, friends and unlimited online support from total strangers who instantly become family by association of this horrible disease. All I want is to be healthy enough to be with my family and not be sick or in pain.

Leigh

Bratt about 1 year ago

I was diagnosed in 2000 with ulcerativie colitis after I had my 1st child. I narrowly escaped a colostomy surgery by changing doctors. I have since been through 5 gastro's! I also have pancreatitis and fibromyalgia. I recently had a relapse and finally went to the Dr in June. I had a full scope and was told that my UC was throughout my entire colon...and I now have to have scopes ever other year. I have to be very careful now with what meds I take and what foods I eat.

Bratt about 1 year ago

I was diagnosed in 2000 with ulcerativie colitis after I had my 1st child. I narrowly escaped a colostomy surgery by changing doctors. I have since been through 5 gastro's! I also have pancreatitis and fibromyalgia. I recently had a relapse and finally went to the Dr in June. I had a full scope and was told that my UC was throughout my entire colon...and I now have to have scopes ever other year. I have to be very careful now with what meds I take and what foods I eat.

Future Wifey about 1 year ago

I was diagnosed when i was 14 with crohns disease,my mother and her 4 siblings have also been battleing with it for awhile now! Since my family has it i was lucky enough not to be misdiagnosed but it was deffiently hard for my mother to see her own daughter struggling like she was! I remember her crying for a few days when we found out because she felt it was her fault! When i was 16 i was admitted into the hosptial for a flare up and was introduced to the lovely steriods, they made my life hell with the weight gain and mood swings i hated them....over the next couple years i was in out of the hosptial every other month it seemed like. Until one day i thought about why i was in there so much and i ended up diagnosing myself....my periods were making me flare up i told my doctor and they put me on birth control so i wouldnt get my period at all. Since then i havent been back to the hosptial and have been in remisson for about four years now! I have some pain here and there but atleast the hosptial visits are gone! Ive actually even stopped taking the birth control and now i have a beautiful baby on the way lol I guess im just saying that if you are a women battleing with crohns watch yourself around your time of the month and see if thats when you flareing..it could help you alot!

Future Wifey about 1 year ago

I was diagnosed when i was 14 with crohns disease,my mother and her 4 siblings have also been battleing with it for awhile now! Since my family has it i was lucky enough not to be misdiagnosed but it was deffiently hard for my mother to see her own daughter struggling like she was! I remember her crying for a few days when we found out because she felt it was her fault! When i was 16 i was admitted into the hosptial for a flare up and was introduced to the lovely steriods, they made my life hell with the weight gain and mood swings i hated them....over the next couple years i was in out of the hosptial every other month it seemed like. Until one day i thought about why i was in there so much and i ended up diagnosing myself....my periods were making me flare up i told my doctor and they put me on birth control so i wouldnt get my period at all. Since then i havent been back to the hosptial and have been in remisson for about four years now! I have some pain here and there but atleast the hosptial visits are gone! Ive actually even stopped taking the birth control and now i have a beautiful baby on the way lol I guess im just saying that if you are a women battleing with crohns watch yourself around your time of the month and see if thats when you flareing..it could help you alot!

Cat about 1 year ago

I have been suffering with Crohns Disease since I was 10 years old. It was always getting misdiagnosed as ulcers, neverous stomach, spastic colon. At 48 years old I was at the Crohns center in Philadelphia PA. Yes, I do have a spastic colon, but I have Crohns. No GI doctor before gave me a colonoscopy. I only had upper GI's and there it was. What a horrible painful thing. That was 2000. I went into remission with a couple of small painful flair ups. Now I'm having a full blown attack. Totally out of remission. I'm 55 now and thinner and weaker to start than before. Please pray for me that I have the strength. Especailly now my doctors no longer believe in pain mangement. So I'm having no pain meds. It's cruel and inhuman. This country should legalize marijuana for cancer patients and Crohns patients and anyone else who has an illness that causes pain and prevents you from eating. I won't break the law. I'm saying they should change the law. I also get the muscle and join pain that comes with it...It's so bad.

Cat about 1 year ago

I have been suffering with Crohns Disease since I was 10 years old. It was always getting misdiagnosed as ulcers, neverous stomach, spastic colon. At 48 years old I was at the Crohns center in Philadelphia PA. Yes, I do have a spastic colon, but I have Crohns. No GI doctor before gave me a colonoscopy. I only had upper GI's and there it was. What a horrible painful thing. That was 2000. I went into remission with a couple of small painful flair ups. Now I'm having a full blown attack. Totally out of remission. I'm 55 now and thinner and weaker to start than before. Please pray for me that I have the strength. Especailly now my doctors no longer believe in pain mangement. So I'm having no pain meds. It's cruel and inhuman. This country should legalize marijuana for cancer patients and Crohns patients and anyone else who has an illness that causes pain and prevents you from eating. I won't break the law. I'm saying they should change the law. I also get the muscle and join pain that comes with it...It's so bad.

~Stephanie~ about 1 year ago

My mother has been living with this disease all of my life. She was misdiagnosed with Colitis/irritable bowel when she was 24yrs old. She was diagnosed with Crohn's when she was 34 and had a colostomy (sp) put in when she was 38 and I was only 2 years old. She struggled to pay for all of the supplies and medications that would help her to live a normal life. She is now 66 years old now and I think she is the greatest women I know for having to live most of her life with this. I pray everyday that they find a cure and no one has to go through, what she went through! Thank you for this!!!

~Stephanie~ about 1 year ago

My mother has been living with this disease all of my life. She was misdiagnosed with Colitis/irritable bowel when she was 24yrs old. She was diagnosed with Crohn's when she was 34 and had a colostomy (sp) put in when she was 38 and I was only 2 years old. She struggled to pay for all of the supplies and medications that would help her to live a normal life. She is now 66 years old now and I think she is the greatest women I know for having to live most of her life with this. I pray everyday that they find a cure and no one has to go through, what she went through! Thank you for this!!!

Caz about 1 year ago

Help support all those that suffer from this disease!

Caz about 1 year ago

Help support all those that suffer from this disease!

Caz about 1 year ago

Caz about 1 year ago

Mrs. Bean about 1 year ago

Ive got to say, adding this cause and seeing the outpouring of love and support from my friends has made me feel really good! I was diagnosed 5 years ago and it changed my life. Let find a cure so no one else has to postpone life to deal with illness!

Mrs. Bean about 1 year ago

Ive got to say, adding this cause and seeing the outpouring of love and support from my friends has made me feel really good! I was diagnosed 5 years ago and it changed my life. Let find a cure so no one else has to postpone life to deal with illness!