Shwachman Diamond Syndrome Foundation

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Advocate and fund research and provide patient and family support
Shwachman Diamond Syndrome Foundation is a national, nonprofit, patient advocacy organization. Our goals are to advocate and support research towards a cure and to improve medical management of symptoms, as well as to link families for emotional s… See more →
  • Jennifer Rod
  • Tim Loftus
  • Debbie Paley Kovacs
  • Sissy Markus
  • Shannon Alexander
  • Eva Pang
  • Erin Alexander
  • Valerie Picinich
  • Richard Rodriguez
  • Diane Picinich
  • Silvana Chiera-Williams
  • Carol Grasso
  • Clarice Wallen Nape
  • Joe Infantini
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  • April 11, 2011

    0People viewed the note
    Blair Van Brunt Posted by
    Blair Van Brunt
    Notices of Fundraisers

    Hi Everyone, Just a follow up on the Dell laptop fundraiser. We raised over $2000 for that fundraiser and I want to thank everyone. If anyone else has a fundraiser that they are organizing, you can post it here and not only can your own friends and family members contribute but the rest of our SDS commu... See More

  • February 22, 2011

    0People viewed the note
    Blair Van Brunt Posted by
    Blair Van Brunt
    Support research for SDS! Raffle Tickets available for a Dell laptop computer!

    Hi All, There is one week left to buy raffle tickets to win a Dell laptop computer with a microphone and carrying case to continue to raise funds for SDSF!! You may have already received our email about this but in case you haven't, please buy some tickets and tell your friends!! Drawing on Feb 28th!... See More

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