A wonderful, bright, funny girl at school has this disease. This organizations funds a HUGE amount of research that directly impacts the patients that are affected and it is very fiscally responsible! I know it is hard times for most, but every little bit helps. Thanks!
The girl I work with at school has this disease. This organizations funds a HUGE amount of research that directly impacts the patients that are affected and it is very fiscally responsible! I know it is hard times for most, but every little bit helps. Thanks!
This is the disease that our daughter has. If you feel so inclined please consider this worthy charity when making a donation. I know the economy is not the best (to say the least) but any amount helps! This organizations funds a HUGE amount of research that directly impacts the patients that are affected and it is very fiscally responsible!
SDS is a bone marrow failure disease that my daughter and many other have.It can lead to leukemia. Please give in any amount you can...and support the research that will improve our childrens' quality of life and hopefully result in a cure.
Please consider a donation to support Shwachman Diamond Syndrome research. SDS is a rare bone marrow failure syndrome. With your help we can discover new ways to improve the health of futures of our children.
Become a member even if you can't donate..Bailee and Sarah will appreciate it. Thanks
does anyone know a good SDS specialist in New jersey NY Pa area-my daughter was just diagnosed
Bailee is my granddaughter and was diagnosed in July 2006> This foundation has been a life saver for my daughter and our family.
My daughter Bailee was diagnosed with this disorder in July 2006 and if it wasn't for her doctors and the people at SDS.Org. I wouldn't know anything about this disorder. I am so grateful to find others who are going through the same thing.
Updated: The cause has raised $100.
Updated: The cause has raised $50.
Have you guys checked out shwachman diamond america...it is a huge cause already on face book, internet, and myspace.....I have gotten a lot of wonderful usefull information there.
I am so glad somone has made a page for "our"cause.We lost a son to SDS in July of 07
Hey everyone... check out the videos above to learn more about SDS, as featured on the show "Mystery Diagnosis" on the Discovery Health channel!
Hey everyone... check out the videos above to learn more about SDS, as featured on the show "Mystery Diagnosis" on the Discovery Health channel!
Our beautiful daughter Jennifer passed away on June 17 1997. She had a bone marrow transplant & went through so much & was so brave. Jennifer was kind, funny & was the light of our lives. Please consider supporting this cause that maybe some day there will be a cure! Every little bit counts. Thank-you!