Support The Joshua Frase Foundation

JFF raises awareness, supports families worldwide who are affected by, and funds research to find a cure and/or treatment for myotubular myopathy (MTM) and several other neuromuscular disorders.

JFF raises awareness, supports families worldwide who are affected by, and funds research to find a cure and/or treatment for myotubular myopathy (MTM) and several other neuromuscular disorders.

When Joshua Frase was born, his muscles were so weak that he could barely draw the air he needed to breathe. Josh’s father, former NFL player, Paul, and his mother, Alison Rockett Frase , were told he might not survive the day. Three months later, a muscle biopsy revealed he had myotubular myopathy (MTM), a neuromuscular disorder. For Josh, and other babies born with this problem, muscle tissue never fully develops. They have difficulty breathing and the simple task of crawling is impossible.
JFF has raised 5.8 million to date and has been funding this tragic disorder for 12 years. This by far exceeds any and all efforts combined - worldwide.

1. JFF supports doctors at Children’s Hospital Boston, Harvard Medical School and the Wake Forest Institute for Regenerative Medicine.

2. 50 percent of these children never celebrate their second birthday, fewer survive past their early school years.

3. Ground breaking research is under way. The first large experimental model worldwide was recently located with this tragic disorder.

4. www.joshuafrase.org