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  • $15,507 Raised

Over 250 Registered for the SMA Conference Through Newly Diagnosed Scholarships

Over 250 Registered for The 2013 Annual SMA Conference Through Newly Diagnosed Conference Scholarships Provided by Families of Spinal Muscular Atrophy. April 5, 2013. Families of Spinal Muscular Atrophy is proud to again offer an amazing support program for

FSMA Announces Grant to Cytokinetics

Families of SMA Announces Grant to Cytokinetics for Preclinical Development of Tirasemtiv for Spinal Muscular Atrophy.  April 4, 2013. Award to support testing of Tirasemtiv in mouse models of Spinal Muscular Atrophy. Cytokinetics, Incorporated (Nasdaq:

110 Research Presentations at The 17th SMA Group Meeting

110 Research Presentations at The 17th Spinal Muscular Atrophy Research Group Meeting Hosted and Supported by Families of SMA. April 3, 2013. An important way Families of SMA advances research is through The Annual SMA Research Group Meeting. The meeting is

Why is this campaign important to you?

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My Grandaughter was diagnosed with SMA type 1 in 2010, we were told that her life span was very limited, sadly she passed away just after her 1st birthday, it left my family totaly devastated & this is why it is so important to us & important that we try to find a cure so that we can save other babies lifes.