Shwachman-Diamond America
Fund Shwachman Diamond Syndrome research and education Learn More
Fundraising: SHWACHMAN-DIAMOND AMERICA
Donations go to:
SHWACHMAN-DIAMOND AMERICA (a 501(c)(3) nonprofit)
*Disseminate current medical literature to families and physicians.
*Help fund the biennial International Congress on SDS.
*Facilitate the development of a medical management plan.
*Promote parent education through a family support network.
Recent Cause Activity
Updated: The cause has raised $100.
SDA awarded THREE $2,500 scholarships to the 5th International Doctor's Congress! We will have all the details in our upcoming eNewsletter!
Updated: The cause has raised $50.
Shwachman-Diamond America is offering two scholarships of up to $2,500 each to assist with expenses of attending the 5th International Congress on Shwachman-Diamond Syndrome from June 19-20, 2009 in Amsterdam.
Qualified applicants should meet at least one of the following criteria:
· Jr. faculty member (has been on medical faculty for fewer than 5 years)
· Currently involved in SDS laboratory or clinical research
· Has a large SDS patient load
· May be second or third year fellows with clear interest in SDS laboratory or clinical research
· Pediatric Hem/Onc, Pediatric GI or other systems affected by SDS
Interested candidates must submit a letter/resume highlighting relevant qualifications as well as current responsibilities. A letter of recommendation from his/her department head is also required.
Shwachman-Diamond America will reimburse award recipients for airfare, lodging, registration fees and other Congress expenses up to a maximum of $2,500 USD.
Please submit letters to Shwachman-Diamond America by April 8, 2009. Award recipients will be notified by April 13, 2009.
Letters may be submitted by email or regular mail.
http://www.forhealthfreedom.org
Economic Stimulus Bill Mandates Electronic Health Records for Every Citizen without Opt-out or Patient Consent Provisions
(Washington, DC)—The Institute for Health Freedom (IHF) warns that the economic stimulus bill mandates electronic health records for every citizen without providing for opt-out or patient consent provisions. "Without those protections, Americans’ electronic health records could be shared—without their consent—with over 600,000 covered entities through the forthcoming nationally linked electronic health-records network," says Sue Blevins, IHF president.
“President Obama has pledged to advance freedom. Therefore the freedom to choose not to participate in a national electronic health-records system must be upheld,” Blevins says. “Unless people have the right to decide if and when their health information is shared or whether to participate in research studies, they don’t have a true right to privacy.”