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  • May 21

    Shwachman-Diamond America now has the Spanish translation of Dr. Harris' "Management of the Hematologic Abnormalities of Shwachman-Diamond Syndrome" available. Email SDA at shwachmandiamondamerica@gmail.com for more information or for a free copy. Pattie Curran

    • Pattie Curran
    • Debi Looke Gentis
    2 people viewed the note
  • February 2

    The SDA board recently approved $7,000 of additional funding for the North American SDS registry. We received info on the registry and have paraphrased it below. For more information or complete details, please contact SDA. The registry has identified more than 80 patients for the SDSR and has si... See More

    • Sammi Smoot
    • Debi Looke Gentis
    • Pattie Curran
    • Lisa Decell Kilcrease
    • Vanessa Johnston
    5 people viewed the note
  • January 31, 2011

    Dr. Harris recently updated "Management of the Hematologic Abnormalities of Shwachman-Diamond Syndrome". Copies of the updated booklet are now available. If you would like a copy mailed to you, please email your mailing address (regular/snail mail) to: shwachmandiamondamerica@gmail.com The new b... See More

    • Debi Looke Gentis
    • Liz Harrison
    2 people viewed the note
  • January 31, 2011

    We received word from the Congress organizers that SDS patients and families will receive a discounted registration to the Congress. Shwachman-Diamond Syndrome patients and their caregivers are eligible to register at a discounted registration rate of USD$295 prior to April 29, 2011. To register at th... See More

  • November 27, 2010

    I haven't done much fundraising for Shwachman-Diamond America this past year, so I've decided to donate all the proceeds from sales through my Stampin up! website from now through Christmas to Shwachman-Diamond America. Shwachman-Diamond America has done great things this year. SDA supported the North... See More