December 19, 2011
December 19, 2011. Isis Pharmaceuticals, Inc. announced today that it has initiated a Phase 1 study of ISIS-SMNRx in patients with spinal muscular atrophy (SMA). Isis is developing ISIS-SMNRx as a potential treatment for all types of SMA. The Phase 1 study of ISIS-SMNRx is a single-dose, dose-esc...See More
December 7, 2011
Dr. Simard is Professor and Head of Biochemistry and Medical Genetics at the University of Manitoba and has been awarded a basic research grant for $25,000 from Families of SMA. Who are you?I am a research scientist and geneticist who has sought to find ways to translate our basic understanding of SM...See More
November 5, 2011
If you live in the Tampa Bay (FL) region, please come out to Ft. Desoto Park on Saturday, November 19, for the FSMA Greater Florida Chapter's Walk-N-Roll! By registering at http://www.fsma.org/LWC/AndysArmy, you will be part of our team, walking the sponsored, scenic 1-mile course in memory of Andy. W...See More
May 15, 2011
Without a treatment or cure for spinal muscular atrophy (SMA), carrier testing is one of the best ways to raise awareness about the disease and to curb incidences of it. However, no testing is 100 percent accurate. Our family learned that firsthand. Please read this post to learn more about our quest ...See More
March 4, 2011
Members of Andy's Army, Please check out this post - http://andysarmy.com/amazing-friends - and support a great fundraiser! All proceeds will be donated to Families of Spinal Muscular Atrophy in Andy's memory. We appreciate each and every dollar you can give as we work to end SMA! Thank you, A...See More