Power of Pain Foundation

Barby 9 days ago

Hello POPF causes members! I wanted to share with you that when you make a donation through causes, they take out a large share of the donation. SO, if you would like to make a donation to the POPF we ask that you do so at our website www.powerofpain.org or you send a check Power of Pain Foundation, 213 Nottingham Drive, Colonial Heights, VA 23834

Cheryl about 1 month ago

Gale, I can totally relate to your pain, as I suffer from most of the things as you. I have Fibromyalgia, Type 2 Diabetes, Neuropathy, C.F.S., Deg. Joint Disease (D.J.D.), C.T.S., I.B.S., messed up discs & vertebraes in my neck & back and some other med. problems. I am in chronic pain every day, 24/7, and it has greatly affected my quality of life. There are so many things that I just can't do anymore...which is very frustrating & depressing! Sadly, some of family & friends just don't understand. My only support is from my husband, Bill, who suffers from T.B.I. (Traumatic Brain Injury) among other things and my mother and the wonderful friends I've met on FB who suffer from the same or some of the medical conditions as me, along with some great support groups! I've joined many great causes to raise awareness about FMS/CFS, Chronic Pain, Diabetes & some other causes that are dear to me. We have to keep the word out there & keep the faith that one day, we will find some relief and a cure for all the terrible diseases, conditions, syndromes out there.

Gale about 1 month ago

My world of pain is from Lupus Nueropthy from TYPE 2 Diabetes iinterstitial Cystitis, fibromyalgia and IBS so I can relate to all here

Barby about 1 month ago

If you have a birthday coming up consider using causes b-day wish donation requests to help the POPF raise funding to help chronic pain patients. http://www.causes.com/powerofpainfoun?m=

Barby about 1 month ago

Anthony, I agree. We need to work hard so the people behind us can get better treatment, timely diagnosis and so they wont have to go through all of the same struggles so many of us have had too. The pain and other symptoms effect all aspects of our lives and with so many of us banning together we are making a difference and change is coming. Thank you for joining the POPF. Blessings, Barby

Anthony about 1 month ago

Barby have you ever considered a presentation in the Dallas, Texas Metroplex?

Thanks so much for introducing me to POPF. I'm grateful to join you and all your members to advocate for greater awareness, increased funding at the State and National levels and through more solid research discover better treatments and cures in our lifetime. The generation coming behind us deserve to be attacked by these diseases and the complex consequences for a full and painless future. I pray for the day when all chronic illneses have become a mere footnote in the history of medicine.
Keep Spreading the Love for The Renewal Of Our Lives, One Day At A Time!

Anthony about 1 month ago

Robyn, I just joined POPF so I found your message about spinal stimulators. By now, you probably have your stimulator. I've had one since October of 2009. I have Moderate Lupus, Severe RA and Sjogrens Syndrome. (now classified as a disease in the U.S.) Plus, I have 6 herniated discs w/stenosis in my lumbar and cervical regions. I live with severe pain every including Polyneuropathy. The stimulator placed in the lumbar region of my spine does decrease my pain 60%, more or less, depending on the level of severity. I do not regret having it done. A Tens Unit was useless for me as I was completely unable to feel the stimulation at all. My diagnosis for all of the 3 autoimmune diseases were quite late in the disease processes, therefore the progression of the diseases continue as after all these years, we have found no treatment to retard the advancement of the diseases and the RA has advanced very quickly in the past few years. I refused the option to have back surgery and my Docs agreed as the progression of the RA would not hold the surgery for very long, IF it was successful in the first place. I have been on two low level chemo therapy's for several months now without much success, if any. We are ready to try another biologic to see if we need to balance the B cells instead of the T cells. As you probably know, it's a ll a guessing game to find what will work, if anything.

So, any relief that I receive from the stimulator as long as it works, I am grateful to experience. Do let me know how you are doing the first month of your stimulator. If you have any questions that perhaps I may share with you through my own experiences, I am more than pleased to do so.

Forgive me for the length of this message, yet it's important for us to understand our reasons for being approved for a stimulator to be in mutual support.

I look forward to hearing from you. I hope that it is successful for you in the long-term!
Many Blessings and may you have a pain-less weekend!
Anthony

Robyn 3 months ago

does anyone know anything about the spinal stimulators... I'm having one placed in june and would love some feedback...

William 3 months ago

My RSD had spread to all my limbs now and believe it or not I am having internal organ problems being caused by the RSD I am told...woo hoo now my internal will be hurting just as bad...wth next!!! I really don't think I would be going on if I wasn't needed by my grandmother and mother!!!

Barby 4 months ago

May 12th - 16th, 2010 is National Neuropathy Awareness Week- Does anyone have any events planned that I can let others know about? PN, Diabetic, RSD, post cancer pain....

Barby 4 months ago

“PARTY WITH PURPOSE”

PARTY WITH PURPOSE is a program to expand our fundraising efforts, The Power of Pain Foundation has created the “Party With Purpose” event model as described below. The “Party with Purpose” model includes individual host or business partner fundraising events. These events are not only a way to raise money, but also an avenue to increase our exposure and introduce new people to The Power of Pain Foundation.

Below is a document that outlines the guidelines for hosted events.

Key points:
• This model includes an individual or group of individuals that host a fundraiser to benefit The Power of Pain Foundation.
• The host determines the date and location of the event and they create the invitation list.
• The host is responsible for covering all party expenses and donating all other funds raised in the foundations name to the foundation.
• An accounting sheet must be submitted within 30 days of the events conclusion.
• The host determines the theme for the event. You can be very creative with the theme! You can host a poker night, invite a guest speaker, have a sporting event viewing, etc.
• The Power of Pain Foundation will provide a menu of restricted funds for the host to determine what the money raised at the event will support.
• The host will work with the Foundations Event Coordinator to discuss event details and any support needed.

Event Example: "Cocktails for Charity"- you can hosted a cocktail party at your house and invite friends, neighbors, and colleagues.

Event Example: events can be held at local restaurants and businesses. Examples include Benefit Nights at restaurants or a business donating a percentage of their sales during a specific time. If you have any suggestions for businesses we should reach out to please send an e-mail. info@powerofpain.com


If you are interested, or know someone who would be interested, in hosting a “Party With Purpose” please e-mail or call 804-657-PAIN (7246). info@powerofpain.com

We greatly appreciate your support!

Peggie 6 months ago

CONGRATS TO P of P F.....THEY'VE REACHED THEIR MILESTONE!!!

Marcia 6 months ago

For many of mu old Friends on Facebook, do not know that I am suffering from RSD. I can no longer work because of the pain and the medication I take. Your donation to Power of Pain Foundation will help all of us that suffer from a Chronic Pain condition. Mine was caused from a fall where I damaged the soft tissue in my knee.

Thank you for listening (or reading).

Please forward this to any of your other friends that may have a Chronic Pain.

Marcia

Barby 7 months ago

For every fan that posts "Power of Pain" on our wall, The Pain Center of Arizona will donate $1 to The Power of Pain Foundation
Posted by Barby Ingle at 1:11pm on December 15th, 2009 Hey Friends, The Pain Center of Arizona and Power of Pain Foundation team up for the Holidays to help chronic pain patients. For every fan that posts "Power of Pain" on our wall, The Pain Center of Arizona will donate $1 to The Power of Pain Foundation. Our goal is to raise $1,000 to help with patients who are economically and socially affected by chronic pain during the Holidays. PLEASE GO TO The Pain Center of Arizona AND HELP US OUT!!!! AND PASS THE WORD ON TO YOUR FRIENDS.
THIS is the address where the message should be left: http://www.facebook.com/#/pages/Phoen...