The SADS Foundation exists to save the lives and support the families of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities Learn More
Are you looking for a simple, meaningful way to support the SADS Foundation? Please click on this link http://bit.ly/4sDc4X and join us in the Chase Community Giving campaign. We are listed under Sudden Arrhythmia Death Syndromes Foundation. One vote from each one of our members will get us a long way!
The Sudden Arrhythmia Death Syndromes Foundation (a 501(c)(3) nonprofit)
My 3 year old son, Landen, was diagnosed when he was born with Long QT syndrome. At 4 days old he had a pacemaker placed. At 7 months old he went into cardiac arrest in his crib, we found him in time to administer CPR and the paramedics shocked his heart back into a normal rhythm. At that time he received an ICD device. He still receives a few shocks a year and had an unsuccessful sympathetic denervation at the Mayo clinic in August.
I am 36 and collapsed at age 12 . The doctor at the time said something was wrong with my heart but I would outgrow it . Well , I never did and suffered through many scary moments . Finally I was diagnosed this year (2009) with Long Qt Syndrome . I have had 3 heart surgeries this year and now have a right sided ICD Implant . It is working out very well for me and brings me peace of mind knowing if my heart stops then I dont have to worry about my loved ones finding me deceased somewhere. My angel on my shoulder gives me the best chance of survival and I am confidant I will be ok now !! Since my diagnosis , I have had 2 nephews , my mother , a niece, a brother, diagnosed and I am working on getting another brother to the doctor for testing. God Bless everyone at SADS for all they do to help all of us affected with these conditions !!
I've been living with an ICD for about 7 years now and am working on a documentary about life with an ICD for people under the age of 25. for more information and to get in touch with me about it please go here --> www.diaryofacyborg.wordpress.com
my beautiful friend Melanie Harris suddenly passed away 3 years ago from SADS, she was married with 6 kids, now in times things just feel the same that she not here anymore, missed her laughs, but most of all miss her friendship!!
Updated: The cause has reached 6,000 members.
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Brittany's Light Burns Strong
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Landen at the Mayo Clinic
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