Sudden Arrhythmia Death Syndromes (SADS) Foundation

3 days ago

ATTENTION!! Provo Utah, and surrounding areas.. Prepare to get educated! We have received our SADS awareness supplies in the mail, so look for the posters and handouts placed throughout Utah County!

Nicole 6 days ago

in May of 2009, my beautiful daughter colasped at school during P.E, she has been diagnosed with Arrhythmia and a hole in the left portion of her heart... This has been a real life altering experience and has changed our lives forever. I am soooo hopeful that by awareness and research I hope for a cure for this condition and pray for those whom have lost thier lives.... I hope that I can help the cause and help my daughter with the scariness of the unknown... I love you very much Savannah....

Laura 8 days ago

Dear Carol - I'm so sorry for your loss. Please take a moment and fill out this risk assessment form to see if this could possibly be the cause. Then you can contact our office - speak to Joanne. She can hopefully help recommend a physician who can help diagnose others in the family who may be affected. http://www.sads.org/images/stories/pd...

Carol 9 days ago

My sister died 4yrs ago and we got no explanation. She was happy and healthy and the autopsy revealed nothing. This is the only explanation I can find that makes sense, although there is no history of heart problems in our family. I read that there doesn't necessarily need no be a family history, that sometimes the heart condition can go unnoticed and undiagnosed. Can somebody please tell me if that's true?

Nancy 12 days ago

This disorder is responsible for the deaths of both of my sons. Now there is a test and research going on to prevent heartache for so many. If you could send $5 it would mean so much.

Judy 13 days ago

I have ischemic congestive cardiomyopathy. I was diagnosed in 2008 after losing my youngest sister to sudden cardiac death. I have four stents and a defibrillator implanted. I have had one incident that triggered the defibrillator. It is a daily battle to keep my symptoms under control. It is imperative that family members who have a relative diagnosed with this condition be aware that it can indeed be an inherited condition.

Jamie 14 days ago

I was diagnosed with Long QT and had a defibrillator placed 6 months ago I have since found out I also have a seizure disorder. I am the mother of 3 children and am very scared that they may be affected by this disorder. We are uninsured and searching for a way to have them tested that we can afford. I was 29 when I had a SCA and very thankful that I was surrounded by medical personnel. I am shocked how few people are aware that the possibility of a young seemingly healthy person who doesnt do drugs can suddenly die. Thanks to the SADS foundation for helping to educate people.

Clare 14 days ago

I posted on here my journey with this-it's very close and dear and personal to my life.My first born beautiful son collapsed and suffered internal heat stroke and seized-at the end of 8th grade-that was three yrs ago- It has been very scary and devastating- But,after I stood back up i was determined to be proactive-get involved-join the support group-THIS effects everyone,whats scary is,you might not know if YOU have this ,if someone YOU love has it-EDUCATION IS POWER! Please just if at the least-look the information up so you are equipped with the knowledge-so maybe you can help someone- This is my life my passion-and guess what-it doesn't control our lives-my son is 6'3 an avid athlete with my husband and his little brother- any questions -feel free to email me- WE LIVE LIFE ! we appreciate every second and love big!................

Lisa 15 days ago

THIS IF FOR MY DAUGHTER AND EVERYONE WHO HAS THIS, WE CAN RAISE AWARENESS IF WE CAN JUST CLICK AND PASS THIS ALONG TO ALL OUT FRIENDS, WON'T YOU PLEASE TAKE THE TIME AND NOT GIVE UP AND JOIN ME IN THIS GREAT CAUSE AND HELP SAVE SOO MANY LIVE AND GET PROPER MEDICAL TESTING !

Clare 18 days ago

This condition is close to my heart-My son was diagnosed with this-What a journey-it has been- he is an avid successful athlete-takes a Betablocker daily which is very improtant to us-i'm an advocate with this foundation-proud of what they do and representy and if in any way i can do more-I will! This is "life and death' BUT IT DOESN'T HAVE TO,NOR SHOULD CONTROL YOUR LIFE!Get as educated as you can with this "silent killer' and make a difference! ......Clare Anita!

Rach 24 days ago

http://www.justgiving.com/rach-carys-...

http://www.facebook.com/rachcooze?ref...


We are skydiving for SADS. Please check out the links, invite friends and give kindly as it's a great cause. Thanks x

Alecia 27 days ago

Really excited, I contacted the local newspaper today and they are coming out on Friday to see about doing a story on Emilie with here cardiac arrest and Long QT..

Renae about 1 month ago

My husband is a walking miracle. He has passed out 33 times. Was diagnosed with all kinds of things, but not properly diagnosed until an adult. Prolonged QT and put on beta blockers with no symptoms since. Now we have four children and all four children have Prolonged QT Syndrome and are properly medicated with beta blockers.

My heart breaks for the families that don't learn about this condition until their loved one(s) have already died. SADS has been a life safer full of information and help for our family and our extended family who also have Long QT....

Renae about 1 month ago

My husband is a walking miracle. He has passed out 33 times. Was diagnosed with all kinds of things, but not properly diagnosed until an adult. Prolonged QT and put on beta blockers with no symptoms since. Now we have four children and all four children have Prolonged QT Syndrome and are properly medicated with beta blockers.