FOD (Fatty Oxidation Disorders) Family Support Group

Our mission is to connect and network with FOD Families & Professionals around the world and to provide emotional support and inform families of new info in screening, diagnosis, research, & treatment

This is the Official Facebook Cause page for the FOD (Fatty Oxidation Disorders) Family Support Group. We are an international Group that deals with all FODs (ie., MCAD, LCHAD, VLCAD, TFP, CPT 1&2, GA2, SCAD, CUD, CACT, Unclassified FODs, etc) and we are an ALL volunteer 501c3 nonprofit that is active around the world. We raise funds for copying/postage costs, website fees, phone calls, conferences, as well as for training new FOD Clinical professionals and for FOD research.

We also have 2 FOD videos on our website's homepage, as well as on my profile here.We hope to add a 3rd in the near future.

The FOD Family Support Group's website at www.fodsupport.org is intended to be used as a worldwide resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for the sharing of ideas and concerns for those whose lives have been touched by a Fatty Oxidation Disorder. Family Stories are shared, questions are answered, nutrition information is discussed, and medical and pharmaceutical updates are offered. You can also view our current newsletter as well as our archive of past newsletters for more information and stories.

The FOD (Fatty Oxidation Disorders) Family Support Group™ was 'born' in 1991 as a way of dealing with the sudden death of our 21-month old daughter, Kristen, in 1985 from undiagnosed MCAD. Initially, she was 'diagnosed' with Reye's Syndrome and it was not until one year later, when our son Kevin was born and diagnosed with MCAD that we discovered Kristen also had this rare metabolic disorder. Our third child Brian, is a carrier of MCAD and not directly affected. To say the least, our family has been changed forever by this genetic disorder.

Awareness of these disorders is imperative for early diagnosis and treatment, prompting us to be strongly committed to promoting expanded ~ universal and comprehensive ~ newborn screening for FODs (and several other metabolic disorders) as well as longterm followup care. We do not want other families to needlessly go through what we have experienced.

From our family to yours, we want you to know...
'You are NOT alone! We Are All in This Together!'

Thank you for thinking of our FOD Families!
Take care...
Deb and Dan Gould
Kristen, Kevin and Brian

Please note: If you choose to donate and want to remain anonymous, it may be better to donate from our FOD website - evidently one can designate 'anonymous' when you donate here and it shows up that way through Network for Good (which sends out the checks), but facebook has a different way of processing your donation - it shows your name and picture! So please be aware of that. And THANK YOU for thinking of our Families!

1. Deb Lee Gould, MEd, Director

2. www.fodsupport.org / FOD videos on site and Deb's profile

3. Advocate Expanded Newborn Screening, longterm followup care & raise funds for training new FOD Clinical Professionals and for future FOD research