December 2, 2011
All month text 'RARE' to 85944 to make a $10 gift to the Helping Hand Grant Fund and the EveryLife Foundation for Rare Diseases will match the total gifts raised in December up to $1,000! Spread the word! Post on Facebook, CaringBridge, CarePages, Twitter and blogs! It is a great opportunity to engag... See More
November 17, 2011
Hear Emily Rapp, Dragon Mom, talk about how her son's Tay-Sachs diagnosis taught her what is truly important about being a parent on NPR Talk of the Nation today at 2pm (EST)!
November 16, 2011
November 14, 2011
Read the full story and other important updates at http://conta.cc/uAVxxu
November 4, 2011
Our Hope on the Horizon benefit on Wednesday, November 2nd was truly a wonderful success raising close to $35,000! Over 130 guests buzzed with excitement about the Tay-Sachs Gene Therapy Consortium's plans to launch human clinical trials in late 2012. Many people commented that hope truly was on the hori... See More
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