Invisible Illness Awareness Week - 2009 Theme is "A Little Help Gives a Lot Hope"

Deb about 1 month ago

I have read so many comments, and post here and it has overwehlmed me , that there are so many people who share my frustration( not anger). As Angel wrote :
"But you don't look sick" I have heard that sentence so many times! Not that I would ever wish My problems on anyone ever ..If these people would spend Just 1 hour in my body ???? But I hope that by all of us that can posting our stories..maybe just maybe ...we can make these Illnesses "VISABLE" ..this has been a hard journey for me ..I have always been such a private person...and tought to keep personal things to myself..Smile and the world smiles with you ! and at my age ? it not easy to change your mind set. Blessed Be to all...Love and Peace

Kerry 2 months ago

Many people say "But you don't look sick" and that is one statement that makes me very reflective... It also makes me crazy to an extent, however you have to think about what you really do look like to them. I know at times I may not look like there is nothing wrong with me but do invite anyone to step inside my body and my mind for a half hour and I guarantee they would be begging to be in their own body again. This is an excellent way for people to gain knowledge of how people suffer and you could just be walking by or sitting right next to one of us and never even know it. Yes I smile yet the pain is always my constant companion... Have a blessed day.. Count your blessings... peace n hugs... 0:)

Lisa 2 months ago

Please join us Monday morning for our Invisible Illness Week Conference!

All times are pacific time, USA
Listen here http://www.invisibleillnessconfe...

SEPT 14
MONDAY - 9 AM
Understanding How we Uniquely Deal with Difficulties in Life
Georgia Shaffer

MONDAY - 12 PM
Finding Health Insurance Coverage with a Pre-existing Condition
Jennifer Jaff

MONDAY - 3 PM
Super Foods for Super-Natural Health
Joanna Faillace

MONDAY - 5:30 PM
Hearts of Gratitude and Joy
Maureen Pratt

SEPT 15

TUESDAY 9 AM
Coping with Chronic Illness in Your Marriage
Bill & Pam Farrell

TUESDAY 12 PM
Coping with Crises on Top of Chronic
Jennifer Saake & Lisa Copen

TUESDAY 3 PM
How to Start a Business When You are Chronically Ill
Kirsten Borrink

TUESDAY 5:30 PM
To to Be Announced
Kelly Rouba

SEPT 16

WEDNESDAY 9 AM
It’s OK to say NO: Building Healthy Boundaries
Jenni Prokopy

WEDNESDAY 12 PM
Parenting When You are Chronically Ill - Chaos and Confessions
Dena Dyer, talking with Lisa Copen

WEDNESDAY 3 PM
Simplifying Your Home and Housework
Marcia Ramsland

WEDNESDAY 5:30 PM
Real Talk About Men and Chronic Illness
Jeff Kenyon

SEPT 167

THURSDAY 9 AM
Find the Job You Desire and Can Do
Rosalind Joffe

THURSDAY 12 PM
When Your Child is Chronically Ill
Jolene Philo

THURSDAY 3 PM
Managing College with a Chronic Illness
Lynn Royster

THURSDAY 5:30 PM
Helping Others Understand Your Pain
Karen Richards

SEPT 18

FRIDAY 9 AM
Applying and Winning Disability Assistance When You Are Chronically Ill
Scott Davis

FRIDAY 12 PM
Being a Teenager with a Chronic Illness
Naomi Kingery

FRIDAY 3 PM
Surgery Preparation
Curtis Dean Hall

FRIDAY 5:30 PM
Closing workshop
Lisa Copen and guests

Deb 2 months ago

Well, In the last 15-20 yrs. I've been thru..Migraines(started @age 9)which caused me to have a stroke in 1990, since I've had 2 heart attacks..i sufer from Asthma, RA,
Fibromyalgia,NCS,CFS, degenerative disc , and spinal nerve deterioration...I've been on 12 different meds ,that I take 3-4 times a day..that still don't take the pain away!
for the most part they may just take the edge off ...it takes me 30-45 mins. just to get out of bed in the morning???YEAAA....and after being up 2 hour , i'm so tired ..you would think I'd been up for days...I have no energy ..to do anything.
And I feel like the Doc's just brush me in and out of their offices...
I had to give up a job I had for allmost 30 yrs.